An Interview with Lucy: Ehlers Danlos Syndrome

An Interview with Lucy: Ehlers Danlos Syndrome

Meet Lucy, a research psychologist from the UK living with Ehlers-Danlos syndrome (EDS), chronic migraine, and persistent pain that went undiagnosed for more than two decades.

From painful periods and joint pain to migraines, digestive issues, and fatigue, Lucy spent years collecting diagnoses without anyone connecting the dots. Receiving an EDS diagnosis finally brought answers—but also a profound shift in how she understood herself and her future.

In this thoughtful and honest conversation, Lucy shares what it means to live with chronic illness while building a meaningful life. We discuss grief, acceptance, pacing, the constant "pain noise" of living in an unpredictable body, and the deliberate choices she makes to prioritise what matters most.

This is a powerful conversation about resilience, self-compassion, and learning to live well alongside chronic illness.

We hope you enjoy.


Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(134)

It feels like a part time job (that i never applied for)

It feels like a part time job (that i never applied for)

Managing a chronic health condition can sometimes feel like a part-time job — and on bad days, a full-time one! There are appointments to organise, medications to remember, symptoms to monitor, paperw...

28 Sep 27min

Social media: the good, the bad and the algorithm

Social media: the good, the bad and the algorithm

When you live with chronic illness, social media can be a lifeline. Finding people who truly get it, discovering practical tips, feeling validated and connecting with a community can make an enormous ...

21 Sep 33min

Weaponising Competence

Weaponising Competence

What happens when being capable starts being used as evidence that you’re not struggling?In this episode, we’re talking about weaponising competence—what happens when your ability to work, parent, soc...

14 Sep 39min

MS and Type 1 Diabetes: Rachel’s Voice

MS and Type 1 Diabetes: Rachel’s Voice

Today you are hearing from Rachel. Rachel was diagnosed with type one diabetes at age 19 in 1998, and after six years of searching for answers, she received a multiple sclerosis diagnosis in 2015. She...

10 Sep 20min

Re-Release - Pets & Health: The Power of Companionship

Re-Release - Pets & Health: The Power of Companionship

Join us this week as we revisit a fun, heart-warming dive into the world of pets and the surprising ways they can boost our wellbeing - especially when living with a chronic health condition. From loy...

7 Sep 38min

Growing Up With Vision Loss: An Interview with Penny

Growing Up With Vision Loss: An Interview with Penny

Today you are hearing from Penny. Penny lives with retinitis pigmentosa, or RP, a genetic eye condition that causes progressive vision loss. She was diagnosed at 16 with the very same condition her mo...

3 Sep 34min

How Do I Explain This Pain? When ‘0 to 10’ Just Isn’t Enough.

How Do I Explain This Pain? When ‘0 to 10’ Just Isn’t Enough.

How do you explain pain when “it hurts” just doesn’t seem to cover it? In this episode, we’re talking about one of the most frustrating parts of living with chronic illness: trying to describe your pa...

31 Aug 35min

Finding My Way Back - Mel’s Voice

Finding My Way Back - Mel’s Voice

Today you are hearing from Mel. Mel lives with multiple sclerosis, and in this episode, she shares what the experience has looked like for her, particularly the first year after diagnosis, when so muc...

27 Aug 27min

Populært innen Helse

fastlegen
rss-gukild-johaug
psykodrama
hvordan-har-du-det-mann
leger-om-livet
rss-skravla-gar
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
rss-dagen-for-dagen
foreldreradet
hjernesterk
morten-ramm-lar-kakla-ga-til-du-sovner
treningsprat
rss-lopedrommen
klimaks
g-punktet
kjed-deg-i-sovn-verdens-kjedeligste-podcast
rss-loping-for-nybegynnere
rss-paradigmepodden
hverdagspsyken
apent-forhold