Three Out of Four // Type 1 Diabetes Stigma and Why We Hide It

Three Out of Four // Type 1 Diabetes Stigma and Why We Hide It

When Neil started a new job in 2008, the questions started the first time his pump beeped. "Wait, what's that?" "You have to do that how many times a day?" And his personal favorite, "You can't eat that, right?" Good people, honest questions. But after 10 years of hiding, he was sure the next one would be "so what did you do to get it?"

It's Diabetes Awareness Month, and this episode is about why telling your story is so hard. In 2017, Nancy Liu and the team at diaTribe found 76 percent of people with type 1 say it comes with stigma, and parents of kids with type 1 feel it most, at 83 percent. The people with the highest A1Cs felt it the most, so the people who most need help feel the most judged for needing it. Plus why Awareness Month is really a lighthouse for one boat.

In this episode:

  • The 2008 coworker questions, and the one Neil was afraid of
  • 3 out of 4 of us: the 2017 stigma research in plain English
  • Why parents and caregivers carry the most judgment
  • Awareness Month as the week the newly diagnosed person can find us
  • A 9-word DM you can send today

This week's challenge: Send one DM to one person in this space: "Saw your post. I get it. Proud of you." And if you're ready, post one true thing about your type 1 in a story, the kind that disappears in 24 hours. Parents and caregivers, same ask from your side.

Helpful resources and newsletter: https://yourbestt1dyear.com

Connect with Neil:
TikTok: https://tiktok.com/@the.betes
Instagram: https://instagram.com/thebetes
Facebook: https://facebook.com/neilgreathouse
LinkedIn: https://linkedin.com/in/neil-greathouse-a607b912
Website: https://yourbestt1dyear.com

Books on Amazon:
Type 1 Diabetes // One Day at a Time: https://a.co/d/6UHooWJ
Type 1 Diabetes // True Stories: https://a.co/d/dfIlyI1

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Episoder(271)

You Don't Travel Alone // A World Diabetes Day Talk

You Don't Travel Alone // A World Diabetes Day Talk

Tomorrow Neil stands in front of a room at Akron Children's Hospital on World Diabetes Day. Kids with sensors on their arms. Parents who haven't slept through the night since diagnosis. Nurses and doc...

13 Nov 6min

Diabetes Awareness Month and Social Media // What the Research Says

Diabetes Awareness Month and Social Media // What the Research Says

Back when Instagram videos were only 15 seconds long, Neil made quick, chaotic type 1 clips: a 4-part series on too many sugar-free gummy bears, and a game of football with a loaf of bread, cradled li...

11 Nov 6min

Two Questions // The Diabetes Distress Screen Nobody Gave You

Two Questions // The Diabetes Distress Screen Nobody Gave You

Neil spent part of this week on a Zoom call, chewing a protein bar on mute (which is like chewing a shoe), nodding at a quarterly something, and thinking about his blood sugar while nobody on the call...

6 Nov 6min

Powerlessness Has a Name // The 7 Sources of Diabetes Distress

Powerlessness Has a Name // The 7 Sources of Diabetes Distress

When it rains in Little Rock, Cora won't leave the back porch. She walks to the edge, looks at the rain, and turns right back around. 5.9 pounds of pure refusal, and nothing Neil does changes it. That...

4 Nov 7min

You Can Do This One Day // Doing Type 1 Diabetes Alone

You Can Do This One Day // Doing Type 1 Diabetes Alone

A few months after Neil was diagnosed in 1992, his dad dragged him to a JDRF event. Neil was 20, arms crossed, doing the math on how fast they could leave. Somewhere in the middle of a keynote, his da...

2 Nov 8min

Eight Weeks of Not Sitting Still

Eight Weeks of Not Sitting Still

The Keep It Moving finale. Eight weeks ago you took a before picture; today the wall goes up: real before-and-afters from the community, from the desk worker who cut a 4.5-hour sit to 90 minutes, to t...

30 Okt 7min

The Trick Is Movement, the Treat Is Range

The Trick Is Movement, the Treat Is Range

Halloween week, the most complicated holiday on the type 1 diabetes calendar, hosted by a man who hands out candy from a fire pit in his front yard like a benevolent porch goblin. This is the Hallowee...

28 Okt 5min

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