Vision Thing PLUS Ricochet article+ Immunologist + Hbot update
I AM MADELINE29 Sep 2023

Vision Thing PLUS Ricochet article+ Immunologist + Hbot update

A big welcome to ricochet readers finding this podcast due to the article written by Simon Spichak ( https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty )! Fyi this was recorded on Augusta 31st(+ additions on September 8th and 9th), ie before previous episodes so don't be surprised, but I waited to published it until the RICHOCHET article came out has publications so far have preferred that and I wanted to be respectful as I'm so grateful for them telling my story. So basically we're a little out of sequence and I wanted to explain why. Also WHY I recorded this episode before the ricochet article came out because I didn't know when it would come out and I couldn't be sure what brain power I'd have then. The perils of a mitochondrial disorder on minimal supports; unpredictable energy for even simply tasks. Episode title talks about some of the ways that I'm employing the coping strategies I talked about in the previous episodes. Also mini update on latest hyperbaric chamber new/supplements. PLUS Sept 8 Immunologist visit 'feels' right after the appointment and then middle of the night dark night of the soul it precipitates. Pic is of a winter holiday Volunteer project from a couple of years ago as it's getting ready for distribution. The room smelled like a forest. It was wonderful Gofundme link for those looking for it https://gofund.me/cff39173 I misspoke *vision thing*is a song AND album name. It's a kind of dark song so I wasn't going to share it but after the middle of the night dark thoughts maybe it's appropriate to https://youtube.com/playlist?list=OLAK5uy_mPZRUA0DBWhgunX03jvJ5q_zLR19c4y7g&si=aH3rOQDDevk-1duV Here's the link in the tweet thread the journalist did with highlights from the article (FB and Instagram block news links now) https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19 And in case you hate Twitter now, I also put the link in the update to the GoFundMe because social media is seeming to allow that to share.

Episoder(144)

preparation is the better part of valor

preparation is the better part of valor

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of...

1 Des 202524min

part 2 One thing after another

part 2 One thing after another

I got in after doing part one and still had a lot to say and still have some pretty high level feelings about they're just being far too many one thing after the other levels of difficulty that keep c...

9 Nov 202514min

part 1 One thing after another

part 1 One thing after another

Life is just kicking my rear with one thing after the other. I'm overcapacity and despair is definitely lapping around the edges

9 Nov 20258min

Day of the Dead, Halloween, & Miracles

Day of the Dead, Halloween, & Miracles

The photo is a small part of what I wore on Thursday pumpkin carving which I talk about along with my pumpkin prowl & a day of the Dead party. community connection fun and whimsy to help me navigate r...

2 Nov 202555min

LifeAfter CBC Independent lens

LifeAfter CBC Independent lens

I talk about this Sundance award-winning documentary a few episodes ago and it is now on CBC's Independent lens this coming Monday at 9:59 Pacific standard Time So check your listings and time zones s...

30 Okt 20251min

WHIMSY

WHIMSY

where I talk about how I use whimsy as a survival tactic. I'll talk more specifically about what actually went down on a Halloween and the day of the Dead. But here I talk about how I've been using it...

30 Okt 202550min

LifeAfter Sundance award-winning documentary

LifeAfter Sundance award-winning documentary

sorry I got the name wrong. I think I was saying in the episode afterlife but it's actually life after and here's the link https://mailchi.mp/multitudefilms/life-after-us-gathr?e=80ed2a920bAlso here's...

6 Okt 202528min

POWER

POWER

well I start talking about losing the help from a friend with laundry that I've had the past year or two but that support not existing anywhere even though it's medically prescribed along with houseke...

25 Sep 202533min

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