8 Ways to Live With a Chronic Illness

8 Ways to Live With a Chronic Illness

Hello and welcome to this episode of The Ankylosing Spondylitis Podcast. I hope everybody is doing fantastic as this episode reaches you. It’s been just a great couple of weeks going on here as far as health wise, I mean, I've been dealing with some fatigue, but, you know, I hope everybody is feeling great, fighting the fatigue that you can keep up that good battle against Ankylosing Spondylitis.

So recently I joined a service that pushes any reviews that that come in from anywhere in the world and I received two of them. One of them was from Australia, and it was from amwave, and this was from November of 2019. And they wrote,

“I really enjoyed the well researched content and practical relatable tips.”

Well, thank you and amwave, if you are listening, please reach out to me through the website spondypodcast.com I'd love to get in touch with you. The other review came in from the United States and it was left in January 19th by somebody that goes by wiscobri, and same with you, if you are listening, please contact me through the spondypodcast.com website. And they wrote,


”Such a great podcast full of relevant conversations related to AS. Anyone living with AS will benefit from and relate to these open and honest chats.”


That's what it's all about. I just want to do these things so that all of us that have Ankylosing Spondylitis can somehow relate, listen and not feel so alone. And before I do this week's Question of the Week, I thought I would point out that you may have heard an ad that I ran at the beginning of each episode The last few episodes for Joy Organics. I had Courtney Garber on an episode or two episodes ago talking about Joy Organics line of CBD products. So I encourage you to go out there and check there'll be a link in the show notes. Anything that you buy, it does create a small payment back to the show to keep it going. So I really appreciate it. If you follow that link and you're in the market for CBD products, I really appreciate it if you consider Joy Organics.


So the Question of the Week, this week, I kind of decided to, instead of speaking a specific question, I'm going to pick one that I've seen a recurring theme for over the last several years, and that's something to use of DMARDs or otherwise known as biologics. And what I thought I would do is over the next few months, I'm going to start releasing some episodes, and doing some episodes on the DMARDs. There's really, I think, a lot of confusion out there. And I'm going to start at the maybe the 30,000 foot level, and then work down to a more more granular level of each type of product. I think some of the things that are being posted, may not factually be correct, but I don't know? The best way to to approach each of those. So I thought what I'd do is just anyway, do a number of different episodes, starting off at the real high level about biologics and working down to a more granular level, they won't all come at one time, they will come over a series of, you know, several months. So, you know, if you have really good or bad experiences with biologics, I'd love it if you went out to spondee podcast calm and contacted me to let me know what happened. And are you 100% able to relate that use of the biologic to the condition that developed where you told 100% by doctors that this is what caused it? We know this is what led to it? Or is it just anecdotal that you developed something around the same time that you took the biologic, and you're relating to that I'd love to know and try to see about putting some of that information together for a show as well. So you get no judgment. I don't. You're 100% able to believe anything. You want as far as what might or might not...

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Episoder(192)

6 Ways AS Is Affecting Your Nails.

6 Ways AS Is Affecting Your Nails.

In this episode I discuss an article from myspondylitisteam.com that discusses how your nails can be affected by AS. As always, this is designed to help you plan the conversations you may need to have...

30 Jun 20247min

Where have I been?

Where have I been?

In this episode, I just give a short talk about where I have been and the journey I hope some of you will do with me.

24 Jun 20249min

Does Axial Spondyloarthritis Cause Headaches?

Does Axial Spondyloarthritis Cause Headaches?

In this episode I discuss an article from myspondylitisteam.com that discusses headaches and AS. As always, this is designed to help you plan the conversations you may need to have with your doctor(s)...

1 Feb 20246min

What Might Cause Spondylitis?

What Might Cause Spondylitis?

In this episode I discuss an article from myspondylitisteam.com that discusses some things that may be causes of spondylitis. As always, this is designed to help you plan the conversations you may nee...

31 Des 20239min

Experiencing Biologic Side Affects?

Experiencing Biologic Side Affects?

In this episode I discuss an article from myspondylitisteam.com that discusses some things to monitor if you start a biologic. As always, this is designed to help you plan the conversations you may ne...

17 Des 20237min

Things I Wish I Was Told When Getting Diagnosed

Things I Wish I Was Told When Getting Diagnosed

In this episode I discuss an article from axialspondyloarthritis.net that discusses some things the auther wishes she was told when diagnosed. As always, this is designed to help you plan the conversa...

19 Nov 202311min

Are Tattoos Safe?

Are Tattoos Safe?

In this episode I discuss an article from Myspondylitisteam.com that discusses some things to consider about getting a tattoo. As always, this is designed to help you plan the conversations you may ne...

5 Nov 20239min

Interview With Dr Ruth Napier - Rare Disease Expert and Immunologist

Interview With Dr Ruth Napier - Rare Disease Expert and Immunologist

In this episode I interview Dr Ruth Napier, a rare disease and Immunologist who is studying Axial Spondyloarthritis. We discusses the research Dr Napier is doing regarding genetics and AS. As always, ...

29 Okt 202332min

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