Episode 39: A Parent’s Perspective: Noelle’s Story
Tube to Table28 Apr 2020

Episode 39: A Parent’s Perspective: Noelle’s Story

Welcome back to another episode of Tube to Table! We are so excited to have another episode as part of our “Parent’s Perspective” series. This week we are joined by Jessica & Chris, whose daughter, Noelle, went through the Thrive Tube Weaning Program a few months ago. Jessica and Chris are sharing their story with Heidi, the clinical coordinator of the program and Noelle’s therapist during her wean! Throughout this episode, you’ll learn more about Noelle’s history, what feeding therapy looked like for the first 5 years, and how her parents found Thrive. Noelle’s parents share their perspective on the intensive program including their experience while traveling to Nashville, Noelle’s amazing progress, and what they learned throughout the process. They will also share advice they have for families of tube-fed children who are either just leaving the NICU, just received a feeding tube, or ready to wean!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

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Episoder(72)

S2, Ep. 28: All About Thrive's Tube Weaning Program

S2, Ep. 28: All About Thrive's Tube Weaning Program

What actually happens inside Thrive’s tube weaning program, and why does it work when other approaches haven’t? In this episode, Jeni and Heidi break down what our tube weaning program really looks li...

5 Mai 46min

S2. Ep. 27: Tube-Fed Kids and Food: From Exposure to Opportunity

S2. Ep. 27: Tube-Fed Kids and Food: From Exposure to Opportunity

What if the goal isn’t to get your child to eat… but to help them want to?    In this episode, Jeni and Heidi unpack a powerful (and often overlooked) mindset shift in the tube weaning journey: moving...

21 Apr 20min

S2, Ep. 26: Feeding Progress When the Tube Needs to Stay

S2, Ep. 26: Feeding Progress When the Tube Needs to Stay

What if your child still needs their feeding tube… and that’s not actually considered a failure? What if progress doesn’t mean removing the tube, but learning how to move forward with it?    For many ...

31 Mar 12min

S2, Ep. 25: Getting Ready for Tube Removal

S2, Ep. 25: Getting Ready for Tube Removal

You’ve spent months (maybe years) keeping your child safe, nourished, and growing with a feeding tube. And now… the moment you’ve been working toward is here! Tube removal. But instead of just relief,...

24 Mar 17min

S2, Ep. 24: Getting Back On Track

S2, Ep. 24: Getting Back On Track

Jeni and Heidi are back this week to talk about how to get back on track when things feel like they're falling apart. Tube weaning is rarely a straight line. If things feel off track, you’re actually ...

10 Mar 16min

S2, Ep. 23: Hunger, Appetite, and Tube Weaning

S2, Ep. 23: Hunger, Appetite, and Tube Weaning

In tube weaning, we hear all the time, “We just need to create hunger.” But hunger isn’t a button you push. It’s a learning process and understanding that changes everything.    Hunger is the body’s p...

3 Mar 24min

S2, Ep. 22: Tubies at the Table

S2, Ep. 22: Tubies at the Table

Happy Feeding Tube Awareness Week! Jeni and Heidi are here this week to celebrate your family and to talk about how to gently and meaningfully include your tube-fed child in family mealtimes without p...

11 Feb 13min

S2, Ep. 21: Illness and Tube Weaning

S2, Ep. 21: Illness and Tube Weaning

If your child gets sick in the middle of tube weaning, it can feel like the whole process is falling apart. It’s certainly frustrating but try not to worry. Getting sick is a normal part of childhood,...

20 Jan 25min

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