You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD
About IBD27 Jun 2023

You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD

Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.

Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions?

Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD community. She tells us why outreach to minority groups sometimes fails, how she approaches patient education, her ideas on giving patients improved access to care, and how motherhood affects her disease journey.

Find Color of Crohn's and Chronic Illness at COCCI.org, Facebook, Twitter, and Instagram.

Find Melodie Narain-Blackwell at Facebook, Twitter, and Instagram.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Episoder(200)

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for ...

10 Sep 202542min

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

We get back to the basics of inflammatory bowel disease (IBD), including the differences between Crohn's disease, ulcerative colitis, and how IBD is different than irritable bowel syndrome (IBS). IBDo...

3 Sep 202541min

Unlocking the Secrets to Stress Management Featuring Jin Lee, PhD

Unlocking the Secrets to Stress Management Featuring Jin Lee, PhD

Stress is a huge problem for people who live with immune-mediated conditions like Crohn's disease or ulcerative colitis. The condition causes tension in all the parts of our lives. We can't get rid of...

30 Aug 202527min

How Storytelling Fosters Compassion for Kids with Chronic Illness

How Storytelling Fosters Compassion for Kids with Chronic Illness

A children's book leads to this conversation, which bridges the worlds of chronic illness, creativity, and connection. I talk with MB (Britt) Mooney, author of "The Mouse Who Couldn't Eat Cheese," a c...

19 Aug 202535min

How Propel a Cure is Transforming Crohn's Disease Research

How Propel a Cure is Transforming Crohn's Disease Research

Episode transcript and more information at: https://bit.ly/AIBD180 Grassroots organizations are an important part of the IBD landscape, helping fill in the many gaps in our underserved community. A...

5 Aug 202539min

From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein

From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein

Amber speaks with Hindy Klein, a member of the Orthodox Jewish community living with Crohn's colitis. Hindy shares how she manages IBD while observing Jewish laws, discussing challenges with diet, fas...

22 Jul 202530min

The Mind-Body Connection in IBS and IBD Featuring Ali Navidi, PsyD

The Mind-Body Connection in IBS and IBD Featuring Ali Navidi, PsyD

Amber interviews Dr. Ali Navidi, a gastropsychologist specializing in mental health for people with gastrointestinal disorders. They discuss the importance of addressing mental health alongside condit...

8 Jul 202544min

Better Health With Breathwork for IBD Featuring Elizabeth Coldrick of Wildly Brave Wellness

Better Health With Breathwork for IBD Featuring Elizabeth Coldrick of Wildly Brave Wellness

Elizabeth Coldrick, a nutritional therapist and breathwork facilitator living with IBD and a permanent ostomy shares her experiences living in Bali, the challenges and benefits of managing IBD abroad,...

17 Jun 202548min

Populært innen Helse

fastlegen
lydartikler-fra-aftenposten
hvordan-har-du-det-mann
rss-gukild-johaug
psykodrama
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
leger-om-livet
rss-garne-damer
foreldreradet
hjernesterk
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
hormonelle-frida
g-punktet
morten-ramm-lar-kakla-ga-til-du-sovner
klimaks
rss-lopedrommen
helsetipspodden
rss-kull
sinnsyn
biohacking-girls-din-podcast-for-optimal-helse