You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD
About IBD27 Jun 2023

You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD

Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.

Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions?

Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD community. She tells us why outreach to minority groups sometimes fails, how she approaches patient education, her ideas on giving patients improved access to care, and how motherhood affects her disease journey.

Find Color of Crohn's and Chronic Illness at COCCI.org, Facebook, Twitter, and Instagram.

Find Melodie Narain-Blackwell at Facebook, Twitter, and Instagram.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Episoder(200)

Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures

Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures

Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative col...

3 Jun 202540min

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses...

20 Mai 202552min

How Tech is Changing Gastroenterology

How Tech is Changing Gastroenterology

Amber and gastroenterologist Dr Neil Parikh discuss technology's impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers....

6 Mai 202527min

Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told...

22 Apr 202557min

Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn'...

8 Apr 202533min

Freelancing Freedom: Crafting Your Career While Caring for Your Health

Freelancing Freedom: Crafting Your Career While Caring for Your Health

It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and s...

25 Mar 202546min

Declutter Your Life While Living with Chronic Illness

Declutter Your Life While Living with Chronic Illness

Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to ma...

11 Mar 20251h 4min

Behind the Scenes of About IBD

Behind the Scenes of About IBD

Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: ...

25 Feb 202514min

Populært innen Helse

fastlegen
lydartikler-fra-aftenposten
hvordan-har-du-det-mann
rss-gukild-johaug
psykodrama
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
leger-om-livet
rss-garne-damer
foreldreradet
hjernesterk
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
hormonelle-frida
g-punktet
morten-ramm-lar-kakla-ga-til-du-sovner
klimaks
rss-lopedrommen
helsetipspodden
rss-kull
sinnsyn
biohacking-girls-din-podcast-for-optimal-helse