Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

We interview Peg Kerswell, the author of a bold new book chronicling her experiences raising a daughter with extremely severe autism. Ellie is nonverbal and self-injurious, she requires 24/7 care with intensive supervision. The grueling, nonstop cycle of care wears Peg down to the bone, but after Ellie is placed in a treatment facility, Peg finally has the chance to breathe, and take an account of the onslaught of traumas the family has endured — a process that prompts her to start writing her story. Peg and Jill Escher discuss the origins of the book, what Peg wants readers to walk away with (hint: the dire realities of severe autism and the desperate need for programs), and the many humorous musings that give her the ability to cope with an absurdly impossible situation. Jill says it is extremely well written, disarmingly honest and one of the best autism memoirs she's ever read.

Links:

Girl Storm on Amazon: https://a.co/d/cQpq5bk

Jill Escher's review of Girl Storm: https://www.ncsautism.org/blog//lost-in-a-bermuda-triangle-of-profound-autism

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Episoder(60)

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Episode #056 - Sounding Off About Autism Month

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Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

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Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

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Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

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