RealTalk MS2 Okt 2018

Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese

A lot of people visit the RealTalk MS website to listen to each podcast episode. I wanted to make that easier to do, so last week I released the RealTalk MS app for iOS or Android smartphones and tablets. The app will always have the latest episode of RealTalk MS cued up and ready for you to listen to, and it also lets me share all kinds of bonus content with you. Head to the Apple App Store to download the iOS version of the app, or the Google Play Store to download the Android version of the app. It's the best way to stay connected to the podcast! And speaking of staying connected to the podcast, next week, the European Committee for Treatment and Research in Multiple Sclerosis is hosting the ECTRIMS 2018 Congress in Berlin, Germany. It's the largest MS conference in the world. I'll be there, and you can look forward to special episodes of RealTalk MS, next Wednesday, Thursday, and Friday, October 10th, 11th, and 12th! You'll get the news, hear the interviews, and you'll be the first to get the research updates and announcements as they're being made at the largest MS conference in the world. And if you have the RealTalk MS app, you might even find some exclusive content from ECTRIMS that will only be available in the app. So next week, connect with the RealTalk MS podcast, and I'll do my best to connect you to ECTRIMS 2018.

My guest on this week's podcast is Victoria Reese, the founder of the We Are Illmatic campaign. Earlier this year, I had an opportunity to talk with Victoria about the concept of inclusion in the MS community, and how the We Are Illmatic campaign is out to change the face of MS.

We're also talking about a research review that reminds us how very bad smoking is for people living with MS, and the results of a 10-year study in the UK about the cost-effectiveness and clinical effectiveness of 4 MS disease modifying therapies. We'll give you the details behind the congressional funding for the National Neurological Conditions Surveillance System in the U.S. And if you're African-American and living with MS, we'll tell you about how you can participate in an MS genetics study being conducted by UCSF.

We have a lot to talk about! Are you ready for RealTalk MS?

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Download the RealTalk MS App! 1:26

RealTalk MS Will Be in Berlin for ECTRIMS 2018 2:27

MS Society UK Publishes Research Review on Smoking & MS 4:10

10-Year Study in UK Shows MS DMT Effective for RRMS 6:25

U.S. Congress Funds National Neurological Surveillance System 9:18

UCSF Recruiting African-Americans for MS Genetic Study 13:09

Interview with Victoria Reese 16:56

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LINKS
If your podcast app doesn't show these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Link Between Smoking & MS Clearer Than Ever

Helpline@mssociety.org.uk (For questions about smoking & MS)

Assessing the Long-Term Effectiveness of Interferon-beta and Glatiramer Acetate in Multiple Sclerosis: Final 10-Year Results from the UK Multiple Sclerosis Risk-Sharing Scheme

Patient Groups Applaud Spending Bill That Funds Important Neuro Data System

UCSF African-American MS Genetic Study Intake Survey

msdb@ucsf.edu (For questions about UCSF African-American MS Genetic Study)

We Are Illmatic

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 55
Hosted By: Jon Strum
Guests: Victoria Reese

Tags: MS, MultipleSclerosis, weareillmatic, ECTRIMS2018, MSSocietyUK, MSActivist, UCSF, RealTalkMS

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