Episode 64: Patient-Driven MS Drug Development with Laura Kolaczkowski
RealTalk MS13 Nov 2018

Episode 64: Patient-Driven MS Drug Development with Laura Kolaczkowski

Patient-centered research is based on an understanding that patients themselves have unique perspectives that can help to mold, change, and improve the work of finding answers to clinical questions. My guest on the podcast is Laura Kolaczkowski, the co-Principal Investigator for iConquerMS. We're talking about the impact this people-powered research network is having on MS research, and how the first ever patient-driven MS drug development project came about. We'll also help you wade through the information and misinformation that surrounds whether people with MS should get a flu shot this season. We'll tell you about a study that demonstrates how ballet exercise can help improve balance and motor control for people living with MS, why a new and more powerful MRI scanner is good news for the MS community, a new smartphone-based study that you can be a part of, and a newly-released video manifesto that you have to see! We have a lot to talk about! Are you ready for RealTalk MS?! ___________

MS & Flu Shots 5:14

Study: Ballet Exercise Improves Balance & Motor Control in People Living with MS 8:05

Genentech Launches Floodlight Open 11:22

FDA Approves More Powerful MRI for Clinical Use 13:33

National MS Society Releases We Believe, a Video Manifesto 15:41

My Interview with Laura Kolaczkowski 17:06

___________

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

STUDY: Targeted Ballet Program Mitigates Ataxia and Improves Balance in Females with Mild-to-Moderate Multiple Sclerosis

Floodlight Open

VIDEO: We Believe

iConquerMS

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 64
Hosted By: Jon Strum
Guest: Laura Kolaczkowski

Tags: MS, MultipleSclerosis, MSActivist, iConquerMS, MSsociety, RealTalkMS

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(518)

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Jul 0s

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Living with depression has been described as "like living under a wet, heavy blanket". It can stop someone from showing up at work, meeting up with friends, and even connecting with their family.  One...

13 Jul 37min

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

The Americans with Disabilities Act ensures that people living with disabilities receive reasonable accommodations at work. That law also applies to students attending most colleges and universities. ...

6 Jul 30min

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

A short while ago, we shared very positive results from the Phase 3 clinical trials for fenebrutinib in both relapsing-remitting and primary progressive MS. Those results have been submitted to the FD...

29 Jun 34min

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Next week, Matt Knaggs and Colin Goodman will attempt to set a Guinness World Record for running the 350-mile length of Ireland with MS. This week, you'll meet Matt and Colin and learn why this undert...

22 Jun 33min

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

For years, the standard medical advice for someone diagnosed with multiple sclerosis was simple, cautious, and as we now know, incredibly limiting: "Take it easy. Don't overexert yourself. And get ple...

15 Jun 47min

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

This week, our coverage of the Consortium of MS Centers annual meeting continues with my guest, Dr. Stephen Krieger. In a wide-ranging conversation, Dr. Krieger offers a very encouraging clinical tria...

8 Jun 31min

Episode 457: From the 2026 CMSC Annual Meeting with Dr. Kathy Zackowski, Dr. Valerie Block, and Dr. Riley Bove

Episode 457: From the 2026 CMSC Annual Meeting with Dr. Kathy Zackowski, Dr. Valerie Block, and Dr. Riley Bove

Last week, the Consortium of Multiple Sclerosis Centers, best known as CMSC, hosted its annual meeting in Charlotte, North Carolina, where we had a chance to talk with some of the world's top MS exper...

1 Jun 29min

Populært innen Helse

fastlegen
rss-gukild-johaug
hvordan-har-du-det-mann
lydartikler-fra-aftenposten
psykodrama
leger-om-livet
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
rss-garne-damer
morten-ramm-lar-kakla-ga-til-du-sovner
foreldreradet
hjernesterk
klimaks
g-punktet
rss-kunsten-a-leve
hverdagspsyken
rss-skravla-gar
sinnsyn
biohacking-girls-din-podcast-for-optimal-helse
kjed-deg-i-sovn-verdens-kjedeligste-podcast