Episode 377: The Art of Hope with Lydia Emily

There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now, along with co-author Lenlee Keep, Lydia Emily has channeled that energy into a book entitled, The Art of Hope: The Life and Art of Lydia Emily.

Lydia Emily and her co-author, Lenlee Keep, join me this week to talk about the process of writing the book and some of the issues affecting people with MS that Lydia Emily is passionate about.

We'll also tell you about study results that provide an answer to how nerve cells die in MS.

We'll share results from a study that shows MS progression may not be directly connected to the number of lesions someone may have.

And we'll tell you about research that provides evidence for continuing your MS disease-modifying therapy, no matter your age.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The Art of Hope :22

A study uses a novel mouse model to explain how nerve cells die in MS 2:17

Study results show that MS progression may have less to do with the number of lesions and more to do with what's happening inside those lesions 5:23

Study results provide evidence for continuing your DMT, even as you age 9:15

Artist Lydia Emily and co-author Lenlee Keep discuss The Art of Hope: The Life and Art of Lydia Emily 14:17

Share this episode 34:50

Have you downloaded the free RealTalk MS app? 35:11

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LINKS

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STUDY: Remyelination Protects Neurons from DLK-Mediated Neurodegeneration
https://www.nature.com/articles/s41467-024-53429-5

STUDY: Advanced MRI Measures of Myelin and Axon Volume Identify Repair in Multiple Sclerosis
https://onlinelibrary.wiley.com/doi/10.1002/ana.27102

STUDY: Impact of Discontinuing Disease-Modifying Therapies On Healthcare Utilization Among Midlife Patients with Multiple Sclerosis in the United States
https://www.jmcp.org/doi/10.18553/jmcp.2024.30.11.1248

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RealTalk MS Episode 377
Guests: Lydia Emily and Lenlee Keep

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