Episode 381: Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman
RealTalk MS16 Des 2024

Episode 381: Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman

There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that!

Joining me to talk about how an app called BeCare is already changing the game when it comes to MS care is the Chief Medical Officer of BeCareLink, Dr. Charisse Litchman.

The FDA has designated Tolebrutinib as a Breakthrough Therapy for the treatment of adults with non-relapsing secondary progressive MS. We're sharing the details.

We'll tell you where you can participate in a phase 2 clinical trial that's designed to test the efficacy of Foralumab, an investigational disease-modifying therapy formulated as a nasal spray, among adults with non-relapsing secondary progressive MS.

We'll share the details of a report that provides some frustrating data about out-of-pocket costs for MS prescription medications.

Dr. Alicyn Magruder reviews the risks and benefits of using off-label medications to manage MS.

And we'll share the results of a study that focused on how socioeconomic status impacts disease severity among kids and teens living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: An app that can tell you if your MS is worsening :22

FDA awards Tolebrutinib Breakthrough Therapy designation 1:04

Phase 2 clinical trial for Foralumab adds 6 additional sites 3:13

Study compares out-of-pocket costs of MS DMTs with meds for other neurologic conditions 5:55

Dr. Alicyn Magruder discusses using off-label medications to manage MS 9:51

Study analyzes the impact of socioeconomic status on disease severity in pediatric-onset MS 15:27

Dr. Charisse Lichtman explains how the BeCare MS app is changing the game and providing an important bridge to better MS care 19:52

Share this episode 30:53

Have you downloaded the free RealTalk MS app? 31:13

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/381

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube
https://www.msif.org/webcast-clinical-trials

CLINICAL TRIAL: A Study of Nasal Foralumab in Non-Active Secondary Progressive Multiple Sclerosis Patients
https://clinicaltrials.gov/study/NCT06292923

STUDY: Costs Are Still On the Rise for Commonly Prescribed Branded Neurologic Medications
https://neurology.org/doi/10.1212/WNL.0000000000210029

STUDY: Association of Social Determinants of Health with Brain MRI Outcomes in Individuals with Pediatric Onset Multiple Sclerosis
https://neurology.org/doi/10.1212/WNL.0000000000210140

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 381
Guests: Dr. Alicyn Magruder, Dr. Charisse Litchman

Privacy Policy

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(525)

Episode 471: Navigating an MS Relapse with Dr. F. Gabriela Karolidis

Episode 471: Navigating an MS Relapse with Dr. F. Gabriela Karolidis

Relapses make life with MS unpredictable. Understanding what they are, why they happen, and how best to manage them can make a relapse less scary and easier to navigate.   This week, Dr. Gabriela Kar...

7 Sep 40min

Episode 470: 42 Marathons in 42 Days with Benji Wilkins

Episode 470: 42 Marathons in 42 Days with Benji Wilkins

Wise men and women remind us that life is a marathon, and not a sprint. Joining us this week is Benji Wilkins. Benji is a magician in the U.K., and for 42 days this summer, his life was quite literall...

31 Aug 30min

Episode 469: Maintaining and Even Improving Cognitive Function If You're Living with MS with Dr. Anna Kratz

Episode 469: Maintaining and Even Improving Cognitive Function If You're Living with MS with Dr. Anna Kratz

Cognitive changes in MS—fluctuations in processing speed, memory, and executive function—can significantly impact daily life, yet they're often misunderstood or overlooked in routine clinical exams. T...

24 Aug 43min

Episode 468: You've Been Given a 15% Chance of Living and Your Spouse Gets Diagnosed with MS with Kathleen Silva

Episode 468: You've Been Given a 15% Chance of Living and Your Spouse Gets Diagnosed with MS with Kathleen Silva

Imagine your spouse or significant other has been diagnosed with MS...shortly after you were diagnosed with stage IV colon cancer, and given just a 15% chance of survival. All of a sudden, the roles o...

17 Aug 38min

Episode 467: Making Shared Decision-Making Work with Dr. Aliza Ben-Zacharia and Linda Lachman

Episode 467: Making Shared Decision-Making Work with Dr. Aliza Ben-Zacharia and Linda Lachman

If you Google the term "shared decision making", you'll find it defined as a collaborative process where patients and clinicians work together to select tests, treatments, and care plans based on clin...

10 Aug 33min

Episode 466: Everything You Ought to Know About Diet and MS with Dr. Tyler Titcomb

Episode 466: Everything You Ought to Know About Diet and MS with Dr. Tyler Titcomb

We get more listener emails about diet and MS than almost any other topic. If you're curious about how some of the well-known diets for MS actually stack up, or you're interested in understanding the ...

3 Aug 27min

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Jul 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Jul 32min

Populært innen Helse

fastlegen
rss-gukild-johaug
hvordan-har-du-det-mann
psykodrama
leger-om-livet
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
rss-skravla-gar
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
foreldreradet
morten-ramm-lar-kakla-ga-til-du-sovner
hormonelle-frida
hjernesterk
klimaks
g-punktet
rss-lopedrommen
lydartikler-fra-aftenposten
rss-kunsten-a-leve
rss-loping-for-nybegynnere
kjed-deg-i-sovn-verdens-kjedeligste-podcast
apent-forhold