Episode 389: Overcoming the Stigma of MS with Denise Schnieders and Fox Rigney
RealTalk MS10 Feb 2025

Episode 389: Overcoming the Stigma of MS with Denise Schnieders and Fox Rigney

Living your best life with MS means learning to overcome the stigma of having a disability, successfully navigating social relationships, and learning how to ask for and accept help.

Joining me to share their perspectives and their experiences in overcoming some of these social obstacles are Denise Schnieders, who was diagnosed with MS just about a year ago, and Fox Rigney, who's been living with MS since 2012.

We're also applauding a forward-thinking caregiver leave benefit that's just been announced by EMD Serono.

We're sharing results of a study that show MS lesions dynamically change over time and explains why those changes aren't apparent on MRI scans.

We'll tell you about an AI-powered drug repurposing platform that has identified a potential treatment for MS.

We'll also share an announcement from the CEO of Google's artificial intelligence company, DeepMind, that we will see pharmaceutical drugs developed by artificial intelligence in clinical trials by the end of this year.

And we'll share the details of a Phase 2 clinical trial that you may qualify to participate in.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Overcoming the stigma of disability, navigating social situations, and how to ask for and receive help :22

EMD Serono implements caregiver leave benefit (And we're applauding!) 1:04

Imaging study reveals that T-2 lesions expand and contract "invisibly" 3:16

Has an AI drug repurposing platform discovered a new treatment for MS? 6:22

We will see pharmaceutical drugs developed by artificial intelligence in clinical trials this year 8:06

Your opportunity to participate in MS resesarch 10:54

Denise Schnieders and Fox Rigney discuss overcoming the stigma of MS 14:04

Share this episode 32:46

Have you downloaded the free RealTalk MS app? 33:06

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/389

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube
https://www.youtube.com/@RealTalkMS

Dynamic Expansion and Contraction of Multiple Sclerosis T-2 Weighted Hyperintense Lesions Are Present Below the Threshold of Visual Perception
https://www.ajnr.org/content/early/2025/01/16/ajnr.A8453

Contact Information for Obexelimab Phase 2 Clinical Trial
Phone: (833) 269-4696
Email: clinicaltrialsinfo@zenasbio.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 389
Guests: Denise Schnieders and Fox Rigney

Privacy Policy

Episoder(504)

Episode 442: The 2026 ACTRIMS Forum (Part 2) with Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug

Episode 442: The 2026 ACTRIMS Forum (Part 2) with Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug

Welcome back to Part Two of our coverage of the 2026 ACTRIMS Forum. This week, we shift our focus to emerging therapies and clinical insights that are re-shaping the future of MS care. From the latest...

16 Feb 44min

Episode 441: The 2026 ACTRIMS Forum with Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu

Episode 441: The 2026 ACTRIMS Forum with Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu

Last week, over 1,400 scientists and clinicians gathered in San Diego, California, at the 2026 Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the A...

9 Feb 33min

Episode 440: An MS Specialist's Response to the FDA with Dr. William Conte

Episode 440: An MS Specialist's Response to the FDA with Dr. William Conte

This past December, the FDA issued a Complete Response Letter to drug manufacturer Sanofi in response to Sanofi's application seeking approval for Tolebrutinib, the first in a new category of investig...

2 Feb 39min

Episode 439: Preventing MS with Dr. Bruce Bebo

Episode 439: Preventing MS with Dr. Bruce Bebo

The first coordinated global research strategy to prevent MS has been announced. This week, Dr. Bruce Bebo, the National MS Society's Executive Vice President and Chief Research & Medical Affairs Offi...

26 Jan 32min

Episode 438: The Discovery of 2 MS Subtypes with Dr. Arman Eshaghi

Episode 438: The Discovery of 2 MS Subtypes with Dr. Arman Eshaghi

One of the more confusing aspects of MS is that it can present differently from one person to the next. A research team at University College London may have uncovered a reason for that when they iden...

19 Jan 29min

Episode 437: Remembering David Mitchell

Episode 437: Remembering David Mitchell

I don't have to remind anyone who listens to this podcast that the cost of MS disease-modifying therapies is obscenely high. And we're not just talking about relatively new medications. Older medicati...

12 Jan 29min

Episode 436: 3 Questions Your Neurologist Should Be Asking Themselves with Dr. Leorah Freeman

Episode 436: 3 Questions Your Neurologist Should Be Asking Themselves with Dr. Leorah Freeman

Scientists are expanding our understanding of MS at an unprecedented pace. This week, Dr. Leorah Freeman discusses why, as new discoveries and medications enter clinical practice, neurologists and MS ...

5 Jan 34min

Episode 435: Revisiting ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Episode 435: Revisiting ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

We're closing out the year by revisiting the most listened-to episode of RealTalk MS in 2025. And it shouldn't come as a major surprise that this year's most listened-to episode was our review of the ...

29 Des 202524min

Populært innen Helse

fastlegen
rss-gukild-johaug
hvordan-har-du-det-mann
lydartikler-fra-aftenposten
psykodrama
leger-om-livet
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
rss-garne-damer
foreldreradet
hormonelle-frida
morten-ramm-lar-kakla-ga-til-du-sovner
hjernesterk
rss-lopedrommen
klimaks
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
g-punktet
treningsprat
helsetipspodden
sinnsyn
level-up-med-anniken-binz