TSC Talks; Episode 23, Rebecca Thereault. Joy and Sorrow on the TSC Journey, "Laughing at the Insanity of Life"
TSC Talks!5 Jan 2019

TSC Talks; Episode 23, Rebecca Thereault. Joy and Sorrow on the TSC Journey, "Laughing at the Insanity of Life"

In this episode Rebecca shares her challenging experiences and incredible advocacy as a TSC Mom, getting an accurate diagnosis of certain TSC manifestations such as seizures, including infantile spasms and autism spectrum disorder. She gives multiple examples of how frustrating managing TSC can be when there are multiple disconnects among doctors and other professionals, even at the same institution, to whom we must turn for help. Rebecca's perseverance in the face of incredulous situations is phenomenal. She also dips into the family impact, coping and her writing. The depth and quality of REbecca's poignant and eloquent writing helps us see the reality of living with both joy and sorrow, on a daily basis, inherent in the TSC journey

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Episoder(155)

TSC Talks 3.0 (not) Research ~ In the Stone Chamber

TSC Talks 3.0 (not) Research ~ In the Stone Chamber

Taking a break from the harsh closed loops and hunkering down in dis stone chamber to give a little freestyle riff for this episode from the stone chamberno links except go watch the video. the audio ...

6 Mai 3min

TSC Talks 3.0 Research~Episode 10

TSC Talks 3.0 Research~Episode 10

I bust through the third wall or whatevs in Episode 10 of TSC Talks 3.0 Research. Dropped the whiteboard til the end. Summed up the 9 episodes and added a bit on the end about CPTSD, TAND and the fact...

29 Apr 35min

TSC Talks 3.0 Research~Episode 9

TSC Talks 3.0 Research~Episode 9

In this episode, I get into mitigation strategies related to the increasing reliance on tech with the arrival of 6G particularly for those living with a chronic and or rare disease that is on multiple...

22 Apr 36min

TSC Talks 3.0 Research~Episode 8

TSC Talks 3.0 Research~Episode 8

Episode 8 of TSC Talks 3.0 Research... continuing on with the extensive history of the rare disease Tuberous Sclerosis Complex, the set up for data harvesting and gene editing and the inevitability of...

15 Apr 30min

TSC Talks 3.0 Research~Episode 7

TSC Talks 3.0 Research~Episode 7

The history of Tuberous Sclerosis Complex.they're juicing it.Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simpli...

8 Apr 33min

TSC Talks 3.0 Research~Episode 6

TSC Talks 3.0 Research~Episode 6

In Episode 6 of TSC Talks Research 3.0, I finish up the discussion of CRISPR and TSC and the trajectory, I get into cannabis and the way they've deglimmered exploration of consciousness for those with...

1 Apr 32min

TSC Talks 3.0 Research~Episode 5

TSC Talks 3.0 Research~Episode 5

In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this n...

25 Mar 28min

TSC Talks 3.0 Research~Episode 4

TSC Talks 3.0 Research~Episode 4

TSC Talks 3.0 Research, Episode 4Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full ...

18 Mar 30min

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