TSC Talks!16 Mar 2019

TSC Talks; March on Capitol Hill 2019 Mastermind! TS Alliance Manager of Research & Global Affairs, Katie Smith

In this episode, my guest Katie Smith, Manager of Research and Global Affairs at TS Alliance discusses with me in detail, just how she coordinates March on Capitol Hill every year to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP). She gives an inside look at the process of organizing volunteers from across the country for this gargantuan undertaking as well as mentions the whats and whys of follow up with our Congresspeople that's so important now thru month's end. Katie joined the TS Alliance staff in 2006. She currently oversees the organization’s international outreach efforts, directs government advocacy efforts, supports the research grants process, and has served as the secretary of TSC International for the past 5 years. During her tenure with the TS Alliance, Katie has implemented our Global Alliance program, which currently includes formal partnerships with Israel, Canada, Mexico, Asia, India and Hungary. Thanks, Katie for giving us this behind the scenes glimpse of how this event comes together, as well as emphasizing the ongoing efforts needed by volunteers to follow up and continue to get record numbers of bipartisan support in the House & Senate of TSCRP, enabling further research, better treatments, leading to a cure for TSC.
(intro music: https://www.purple-planet.com}

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Episoder(155)

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