TSC Talks!29 Mar 2019

TSC Talks; Triathlons, Transition and TSC with Reiko Donato, TSC Mom, Ironman Triathlete, Chair TS Alliance GA

Reiko Donato, TSC Mom, Brand Ambassador at Coeur Sports, Chair of the TS Alliance of Atlanta and past TS Alliance Board of Directors Member, walks me thru the timeline from diagnosis of her daughter thru the current day. She details the process of transition (transition planning is a formal process for helping kids with IEPs figure out what they want to do after high school and how to get there)and elaborates on a new program in her home state of Georgia called Transition Academy. Transition Academy is a career and work center for students with cognitive disabilities, ages 18-22, helping them make a smooth transition into the community upon their exit from the school system. We also delve into her entry into competitive running as a coping mechanism to deal with the stressors of TSC care. A longtime runner, Reiko decided to try a short triathlon. She was hooked, and in no time, was finishing her 5th Ironman in Chattanooga, TN, winning her age group on her birthday!!, Later this year, she will compete in her 6th Ironman in Hawaii. We discuss training, racing, fundraising, and much more. Reiko draws motivation from the unpredictable and often intense nature of TSC care, "While I've certainly felt overwhelmed at times, things never look as bad after a run, and I come home feeling virtually stress-free". Originally from Setagaya Tokyo, residing in Roswell, GA with her husband and daughter. "Reiko's perseverance, determination, risk-taking, traits have been central to Reiko's role as an advocate, heightening awareness of TSC and promoting research to lessen its impact" (https://cdmrp.army.mil/cwg/stories/2013/donato_profile) (music credit: https://www.purple-planet.com/)

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Episoder(155)

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