TSC Talks! Dedicated, Dynamic Dena! Part 1; Her Early Career; Dena Hook, VP of Support Services, with the TS Alliance
TSC Talks!7 Jun 2019

TSC Talks! Dedicated, Dynamic Dena! Part 1; Her Early Career; Dena Hook, VP of Support Services, with the TS Alliance

The TSC world famous & beloved Dena Hook, Vice President of Support Services at the TS Alliance comes on the podcast to discuss, well, a lot. This is Part 1 of our conversation and Dena walks us through her history right up until she started working at the TS Alliance in 2007. Dena shares her experience advocating for her son with severe dyslexia in the early years of special needs legislation and how that inspired & launched her career in advocacy. She describes that it was a time when being "in the building" for a kid with special needs, was about as much support as was given. Dena was Technical Assistant Coordinator for the National Parent Training and Information Center (PACER) for over 6 years training educational advocates throughout the country. She worked with the Office of Special Education Programs (OSEP) during the reauthorization of the Individuals with Disabilities Education Act in 1997. A published author through Incentive Publication, she wrote: “Success with IEPs” and “An IEP Writing Tool” for teachers and school administrators. During her time as CEO of Family and Children First, she ran Part C of the Individuals with Disabilities Education Act Early Childhood Program, Truancy Mediation, and Strengthening Families a Mental Health and Drug Addiction Program for Marion County in Ohio. She is certified as Special Education Mediator through the Juvenile Justice Center of Atlanta and as a Truancy Mediator through the Ohio Supreme Court. On a personal level, Dena also talks about leaving her job at PACER & working with OSEP to return to Ohio to aid her mother and how despite leaving an esteemed position, she was able to use her experience as a parent, advocate & then administrator to rise once again to leadership at Family & Children First in her home state of Ohio. Buckle up, there's a lot here and more on the way! (music credit: https://www.purple-planet.com)

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Episoder(155)

TSC Talks 3.0 (not) Research ~ In the Stone Chamber

TSC Talks 3.0 (not) Research ~ In the Stone Chamber

Taking a break from the harsh closed loops and hunkering down in dis stone chamber to give a little freestyle riff for this episode from the stone chamberno links except go watch the video. the audio ...

6 Mai 3min

TSC Talks 3.0 Research~Episode 10

TSC Talks 3.0 Research~Episode 10

I bust through the third wall or whatevs in Episode 10 of TSC Talks 3.0 Research. Dropped the whiteboard til the end. Summed up the 9 episodes and added a bit on the end about CPTSD, TAND and the fact...

29 Apr 35min

TSC Talks 3.0 Research~Episode 9

TSC Talks 3.0 Research~Episode 9

In this episode, I get into mitigation strategies related to the increasing reliance on tech with the arrival of 6G particularly for those living with a chronic and or rare disease that is on multiple...

22 Apr 36min

TSC Talks 3.0 Research~Episode 8

TSC Talks 3.0 Research~Episode 8

Episode 8 of TSC Talks 3.0 Research... continuing on with the extensive history of the rare disease Tuberous Sclerosis Complex, the set up for data harvesting and gene editing and the inevitability of...

15 Apr 30min

TSC Talks 3.0 Research~Episode 7

TSC Talks 3.0 Research~Episode 7

The history of Tuberous Sclerosis Complex.they're juicing it.Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simpli...

8 Apr 33min

TSC Talks 3.0 Research~Episode 6

TSC Talks 3.0 Research~Episode 6

In Episode 6 of TSC Talks Research 3.0, I finish up the discussion of CRISPR and TSC and the trajectory, I get into cannabis and the way they've deglimmered exploration of consciousness for those with...

1 Apr 32min

TSC Talks 3.0 Research~Episode 5

TSC Talks 3.0 Research~Episode 5

In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this n...

25 Mar 28min

TSC Talks 3.0 Research~Episode 4

TSC Talks 3.0 Research~Episode 4

TSC Talks 3.0 Research, Episode 4Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full ...

18 Mar 30min

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