Maggies corner | Let’s talk accessibility

This episode we talk about accessibility and it’s an important issue not only in FND but in Disability in general. As a disabled led media ourselves we are amplifying Cripple Media. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

links to check out

recommendations today

The juice media

goverment advertisement that are false but it’s satire at its best and it’s hilarious.
https://youtu.be/X_0zFEtPbiA

Paraolympics Dylan Alcott what an amazing man and especially at the paraolympics what he says at the games its quite important.

https://youtu.be/hpa4WGYX2-U

https://youtu.be/aEM1ecJ_O8U

Check out if you’re in Melbourne in November : abilityfest

https://www.abilityfest.com.au/about

Arts centre melbourne accessibility ;

https://www.artscentremelbourne.com.au/community/accessible-programming

Disability services for universities in australia

https://www.adcet.edu.au/students-with-disability/current-students/disability-services-university

creating an accessible event

https://celebratingdisability.co.uk/creating-an-accessible-event/

Who are we Amplifying ? Cripple Media!

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness. You can follow them on Instagram @cripple media and also read more about them on their website which is : https://cripplemedia.com/about/

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

https://www.neurokid.co.uk/

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND