Working With FND : Tiarnes experience : The FND PODCAST

In this heartfelt episode of The FND Podcast, Detty welcomes back the inspiring Tiarne, who bravely shares her personal journey of returning to work while living with Functional Neurological Disorder (FND). From the early days of navigating symptoms and mobility aids to finding the balance between part-time work and self-care, Tiarne opens up about the realities, challenges, and victories of employment with a chronic condition.

Whether you’re considering re-entering the workforce, looking into volunteering, or simply curious about how others manage FND in the workplace — this conversation is filled with honesty, insight, and encouragement. Tiarne reminds us that pacing, self-awareness, and finding supportive environments can make all the difference.

We also talked about

– Flexible working arrangements

– Managing symptoms on the job

– Advocating for your needs

– What really matters when you’re living with FND

– The power of purpose and doing what you love

A huge thank you to Tiarne for being so open and sharing her lived experience working with FND

Don’t forget to check out the show notes for helpful resources and past episodes, including Tiarne’s My FND Reality and our insightful chat with Katherine Gill from FND Australia Support Services on returning to work.

As always — stay safe, love hard, and peace. See you on the flip side

To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone. Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. click here to listen to this episode

To listen to Tiarnes FND Journey and her FND REALITY episode CLICK HERE

This Episodes notes:

Job Access : the guide to disability employment : click here for more details

Disability support services Australia in Victoria click here for more details

Employment programs: disability *Aus government.

Returning back to work presentation on FND Australia Support Services Channel : Click here for more details

Transitioning from school to work with a disability: click here for more details

If you feel like you would like to Volunteer in Australia : click here for more details

Caitlins story with FND and work :

If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details

Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that I've found so far however there is more out there :

For USA from what I could see : Job Training and programs for people with a disability

Americans with Disability Act : protecting people with disabilities from discrimination

Office for disability employment policy click here

For Canada: Canadian Association for Supported Employment click here

Canada employment Strategy for Canadians with disabilities click here

For England: Employment disability rights click here:

Careers and work for disabled people from Disability rights UK click here

Ability Net : Information about Disability and Employment

Music used in this Podcast is from Soundstripe : licensed for use

Lets be three by Sam Marsh

Just like me by Thruline

Light the way by Ian Kelosky

Map zoom out

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a look

RewiredOT (click here to check it out) is a compassionate, educational resource hub created by an Occupational Therapist Jason Kruzeman. It offers a unique blend of clinical knowledge and personal insight, focusing on nervous system regulation, sensory processing, and trauma-informed support for people living with FND and other complex conditions.

The website provides accessible guides, tools, and reflections that help people better understand their body’s responses, build safety into daily life, and work with—not against—their nervous system.

Rather than pushing through or "fixing" symptoms, RewiredOT encourages gentle curiosity, pacing, and self-kindness—a refreshing and validating approach for anyone navigating FND.

Whether you're newly diagnosed or looking to deepen your understanding, RewiredOT is a safe, thoughtful space that meets you where you are.https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the week:

U & I by Kolidescopes click to listen here

Just a really uplifting song

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

The published research Paper on FND by Haseel Bhatt

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.