MS-Perspektive - The Multiple Sclerosis Podcast14 Feb 2024

#048: Living with progressive MS in Canada. Interview with patient advocate Ardra Shephard

Ardra Shephard deals with the everyday struggles of progressive MS in Canada and talks about it on her blog and podcast and our interview.

You can find the written questions and answer to on my blog: https://ms-perspektive.com/048-ardra-shephard

Ardra Shephard has been writing about her life with multiple sclerosis on TrippingOnAir.com for many years, trying to break down the stigmas that people with the disease face. We talk about her life with progressive MS, how important it is to stand up for yourself and the support available in Canada.

She is a particularly fashion-conscious woman who hosts AMI-tv's Fashion dis and the video podcast Tripping on Air, which she co-hosts with Alex Hajjar, whose wife has MS.

Introduction - who is Ardra Shephard?

My name is Ardra Shephard, I live in Toronto, Canada, with my husband and dog Tilly. I'm a writer, podcaster and television host.

Which website can you recommend for people living with MS in Canada?

MS Canada, BARLO MS Centre for the 10k patients in Toronto, and of course trippingonair.com. Of course we are a global community and I would be remiss if I didn't mention London-based Professor Giovannini's MS Selfie newsletter which you can find on Substack.

Finally, what message of hope or encouragement would you like to share with individuals living with MS in Canada?

It's always been helpful for me to know that there are all kinds of people living with MS who, whether they have a few symptoms or a lot of symptoms, are figuring out how to live joyful fulfilling lives. Meanwhile, I take comfort knowing that the best minds in the field are working hard to improve MS outcomes.

How and where can interested people find you online?

You can find the Tripping On Air podcast on youtube or wherever you get your pods, or go to trippingonair.com.

---

Thank you, Ardra, for your continued commitment to people with visible disabilities in general and with progressive MS in particular, and good luck and continued energy for this mission.

See you soon and try to make the best out of your life,
Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(175)

#173: Immunoadsorption for MS Relapses. Interview with senior physician Anna-Katharina Eser

In this episode, I speak with Anna-Katharina Eser, senior physician at the MS Centre in Mainkofen, Germany, about immunoadsorption in multiple sclerosis. Immunoadsorption is a specialized blood purifi...

1 Jul 15min

#172: AI for MS. How the CLAIMS Project Could Transform MS Care – with Prof. Friedemann Paul

In this episode, Prof. Friedemann Paul from Charité – Universitätsmedizin Berlin, Germany, explains how the European CLAIMS project aims to improve multiple sclerosis care through AI-assisted decision...

24 Jun 35min

#171: The Gut-Brain Axis in Multiple Sclerosis. Interview with Prof. Dr. Anne-Katrin Pröbstel

The gut–brain axis in multiple sclerosis is an exciting field of research that connects the gut microbiome, immune system and central nervous system. In this interview, Prof. Dr. Anne-Katrin Pröbstel ...

17 Jun 19min

#170: Vaccinations and MS – What You Need to Know with Dr. Thomas Grüter

In this episode, Nele talks with neurologist Dr. Thomas Grüter about vaccinations and multiple sclerosis. The original interview was published in German in December 2024. This English version has been...

10 Jun 15min

#169: Multiple Sclerosis in Nepal. Diagnosis, Treatment and Access to Care

In this episode, Nele speaks with Dr. Ayush Chandra and Dr. Avinash Chandra about multiple sclerosis in Nepal. They explain why MS is still often diagnosed late, how limited access to MRI, neurologist...

3 Jun 58min

#168: From Fragmented Care to Connected Care: The MS360° Approach with Dr. Isabel Voigt

In this episode, Dr. Isabel Voigt from the MS Center Dresden introduces the MS360° approach, a digital-first hybrid care model designed to make multiple sclerosis care more continuous, proactive, and ...

27 Mai 33min

#167: Living with MS: Fatigue, Walking & Energy — Insights from Sanam

In episode #167, Sanam Saeedi shares her perspective on living with MS, fatigue, walking and energy. Diagnosed in 2019, she explains how symptoms such as foot drop, balance issues and fatigue changed ...

20 Mai 28min

#166: Unseen MS Symptoms: A Patient Expert's Perspective from Iceland with Hjördís Ýrr Skúladóttir

What are unseen MS symptoms really like? In this inspiring episode, Hjördís Ýrr Skúladóttir from Iceland shares her personal journey with multiple sclerosis, from diagnosis and burnout to becoming a p...

13 Mai 48min