Things I Wish I Knew When I Was Diagnosed with POTS

Things I Wish I Knew When I Was Diagnosed with POTS

In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the personal experiences and valuable insights that Kelsey wishes she had known at the time of her Postural Orthostatic Tachycardia Syndrome (POTS) diagnosis. They discuss the long and often frustrating journey towards diagnosis, the importance of tracking symptoms, and the essential role of the right kind of exercise in recovery. The episode highlights the bumpy road of treatment, the potential need for medications, and the importance of having a supportive community. The discussion also covers the launch of new consultation visits designed to help individuals better understand and manage their symptoms.

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Episoder(63)

The Invisible Burden of Chronic Illness

The Invisible Burden of Chronic Illness

Hosts Kelsey and Britney discuss the invisible burden of living with chronic illness, including POTS, and the challenges of diagnosis, treatment, and explaining symptoms when you look fine. They share...

3 Nov 25min

Electrolytes: The Key to Proper Hydration with Redmond's Darryl Bosshardt

Electrolytes: The Key to Proper Hydration with Redmond's Darryl Bosshardt

In this episode, Kelsey and Redmond’s Darryl Bosshardt discuss the significance of salt and electrolytes, particularly for individuals with POTS. They explore the historical context of salt, its essen...

20 Okt 40min

From Misdiagnosis To Management: Ryenn’s POTS Journey

From Misdiagnosis To Management: Ryenn’s POTS Journey

In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her sto...

6 Okt 36min

POTS, Marriage, and Motherhood - What We Learned Along The Way

POTS, Marriage, and Motherhood - What We Learned Along The Way

In this episode, Kelsey and her husband Cale discuss the journey of living with POTS, diagnosis, treatment, and how it has impacted their family life. They share insights, challenges, and advice for o...

22 Sep 38min

The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein

The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein

Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician ...

4 Aug 28min

Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team

Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team

Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires cons...

20 Jul 19min

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.I...

30 Jun 51min

Learning to Trust Your Body Again with POTS

Learning to Trust Your Body Again with POTS

How do you start trusting your body again after a POTS diagnosis?In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings ...

16 Jun 16min

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