Parkinson’s and work

Parkinson’s and work

What’s it like managing your working life with Parkinson’s?We bring together Elisabeth Ildal, a politician from Denmark, and Gary Boyle, a former HR manager from Ireland, both of whom have young onset Parkinson’s. In an honest and thought-provoking discussion, they connect over their experiences of:•feeling too “terrified” to tell employers about their diagnosis – and retreating into the Parkinson’s ‘closet’ •navigating the workplace, including opening up to their bosses and explaining the condition and symptoms to colleagues •choosing whether to continue working or take a step back from a career – and the psychological and physical effects of their decisionsThe Parkinson’s Life podcast is brought to you by Parkinson’s Life (www.parkinsonslife.eu/), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(www.epda.eu.com/), the leading voice for Parkinson’s in Europe.If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (www.facebook.com/parkinsonslife/) and Twitter (twitter.com/parkinsons_life)

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Episoder(34)

Beyond the operation: life with adaptive Deep Brain Stimulation

Beyond the operation: life with adaptive Deep Brain Stimulation

"I thought - not a chance. No way on earth will I have brain surgery. Where I am now is astounding.”In this episode of the Parkinson's Life podcast, we explore the next frontier of deep brain stimulat...

16 Jul 43min

World Parkinson's Day 2026: bridging the care gap

World Parkinson's Day 2026: bridging the care gap

“A doctor wants to make us better. But patients want to feel good too.”In this special World Parkinson's Day episode of the Parkinson's Life podcast, we're shining a light on Parkinson's nurses, and t...

7 Apr 59min

Women and Parkinson's: closing the gender gap

Women and Parkinson's: closing the gender gap

This podcast has been developed and funded by Merz Therapeutics GmbH. "90% of women said their neurologist had never asked them about the impact of hormones on their symptoms.”In this special Internat...

6 Mar 36min

An introduction to genetics and Parkinson’s

An introduction to genetics and Parkinson’s

"I wanted to know what kind of mutation I had, because I wanted to pay attention to the research.”In this episode of the Parkinson’s Life podcast, we’re exploring the world of genetics, the role it pl...

6 Okt 202557min

World Parkinson’s Day - an idea that blossomed and bloomed

World Parkinson’s Day - an idea that blossomed and bloomed

“What we wanted was for people to come together. If it achieves better awareness and better treatment, then I think we've done our job.”As the Parkinson’s Life podcast marks World Parkinson’s Day 2025...

8 Apr 202559min

Exploring disease modifying therapies for Parkinson’s

Exploring disease modifying therapies for Parkinson’s

What are disease modifying therapies (DMTs) and what impact could they have for people living with Parkinson’s?In this episode, we delve into the evolving world of DMTs, exploring their potential to s...

12 Des 202459min

Understanding Deep Brain Stimulation and Parkinson’s

Understanding Deep Brain Stimulation and Parkinson’s

In this episode, we explore deep brain stimulation (DBS) and the impact it can have on people with Parkinson’s.Gerlach Roomans was diagnosed in 2009 and decided to have a DBS procedure after a discuss...

3 Des 202425min

Apps, devices and digital support: exploring technology and Parkinson's

Apps, devices and digital support: exploring technology and Parkinson's

In this episode, we look at the role that technology can play in supporting people with Parkinson’s.  UK-based Elaine Payne shares how she uses digital devices to help manage her Parkinson’s symptoms ...

20 Jun 202444min

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