Poor Spinraza Adherence Leads to More Illness, Healthcare Costs & December Can Be Bittersweet
SMA News Today’s multimedia associate, Price Wooldridge, discusses how not having Spinraza therapy as prescribed – called treatment non-adherence – increases overall costs and healthcare use for SMA p...
27 Des 202111min
Treatment Delays May Be Less Important Than Family Support & Cherishing Togetherness During Holidays
SMA News Today’s multimedia associate, Price Wooldridge, discusses how delays of Spinraza treatment due to COVID-19 seem to affect children's function less than weaker family support, small study fou...
23 Des 20218min
Phase 3 Trial of Apitegromab on Track for This Year & Managing Technological Issues With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock plans to initiate a pivotal trial of its muscle-targeted therapy in non-ambulatory spinal muscular atrophy patients in 2...
20 Des 20216min
Neurofilaments and Nerve-muscle Test Show SMA Severity & SMA Adults Struggle to Access Evrysdi
SMA News Today’s multimedia associate, Price Wooldridge, discusses an article about how blood levels of neurofilaments and the results of a nerve-muscle test may be biomarkers for SMA onset/severity a...
16 Des 202114min
#96: Chat with SMA Columnist Halsey Blocher and her Mother & Caregiver, Heather Dye
In this episode, host Kevin Schaefer talks with Halsey Blocher and Heather Dye from Fort Wayne, Indiana. Halsey is a columnist for SMA News Today, and her mother Heather is a caregiver and advocate. D...
14 Des 202134min
Novartis Applauds Move to Reimburse Families for Zolgensma & Making Connections with SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Novartis Pharmaceuticals Canada applauds the province of Quebec for its move to offer public reimbursement for the SMA gene thera...
13 Des 20216min
Acute Liver Failure Warning Added to Zolgensma Label & Time Management and SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the U.S. FDA has added acute liver failure to the list of concerns with use of Zolgensma in children with spinal muscular atrophy...
9 Des 20219min
Oral SMA Therapy Is Ideal and Aids Motor Skills and Breathing & Why No Changes in SMA is Good
SMA News Today’s multimedia associate, Price Wooldridge, discusses how better/stable motor function and breathing, along with oral use, is ranked high in a UK survey of SMA type 2 and 3 adult patients...
6 Des 202111min
