#98: How to Manage Caregivers, a Chat with SMA Contributors DeAnn Runge and Michael Morale
In episode 98, host Kevin Schaefer talks with fellow SMA News Today contributors about hiring and managing caregivers. Listen as Kevin talks with DeAnn Runge and Michael Morale about their experiences...
18 Jan 202258min
Spinraza May Restore Development of Motor Neurons & Why Finding Reliable SMA Carers Is Not Easy
SMA News Today’s multimedia associate, Price Wooldridge, discuses how a study in symptomatic SMA children suggests Spinraza also works to return development to these nerve cells, especially if given e...
17 Jan 20227min
Son With SMA Inspires Character on ‘Ordinary Joe’ TV Show & How SMA Can Shape Creativity
SMA News Today’s multimedia associate, Price Wooldridge reads an article about John Gluck, who has a type of muscular dystrophy, portrays versions of Joe's wheelchair-bound son with SMA on the NBC ser...
13 Jan 202211min
Evrysdi May Be Available in Early 2022 to Eligible UK Patients &Modifying a Wheelchair for SMA Needs
SMA News Today’s multimedia associate, Price Wooldridge, discusses how The National Institute for Health and Care Excellence has recommended that Evrysdi be provided at low or no cost to eligible SMA ...
10 Jan 202210min
Spinraza Improves Hand Dexterity in SMA Type 2 Children & Achieving Ambitions with SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improved fine manual dexterity in both hands of five children with SMA type 2 over 1.5 years of treatment, a case series...
6 Jan 202210min
#97: Interview with Ali Ramos, a Social Worker and Disability and LGBTQ+ Activist.
In episode 97, host Kevin Schaefer talks with Ali Ramos (she/her) from Amarillo, Texas. Ali is a licensed social worker and activist, focusing on both the disability and LGBTQ communities. She talks w...
4 Jan 202235min
Spinraza Delays Do Not Directly Affect Children in Italy & Making Goals with SMA
SMA News Today’s multimedia associate, Price Wooldridge, reads a news article on how the delays in Spinraza treatment due to the COVID-19 pandemic did not directly result in worsening symptoms in chil...
3 Jan 202211min
Saliva Samples May Help Diagnose SMA & Moving Into a New Home with SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study showed for the first time that genetic analysis of dried saliva spots correctly identified people with spinal muscular at...
30 Des 202111min
