#001: My personal journey with MS

#001: My personal journey with MS

Before I'm going to ask other people living with MS about their way I'm sharing my personal journey with the disease so far. You can read the complete blog article here: https://ms-perspektive.com/001-my-journey

Welcome to episode one of the podcast and correspondent blog article where I speak about my personal journey with MS so far. I have choosen all the questions that I'm going to ask my upcomoning interview partners about their life with multiple sclerosis. I think that is fair and maybe answers some questions you might have.

Table of Content Introduction Nele Handwerker

I'm 42 years old and live in Pirna, near my hometown Dresden together with my husband, our daughter and two gerbils as pets. I love to be close to the elbriver, which I can see from our apartment and enjoy when going for a lunch walk. When I got married I took on my husbands surname. But I had started the German MS-Perspektive podcast already and so I decided to stay officially with my birth name. So nevermind if you see my picture and it says Nele von Horsten instead of Nele Handwerker.

I love reading and am a loyal subscriber of the National Geographic Magazine since 2002.
My garden is a mix of wild nature with a few berries and vegetables to eat and some flowers. I ride my bike every weekday to bring my daughter to kindergarten. I'm interested in many things and keep asking questions to learn and grow.

Is there anything else you would like to share with listeners?

Please never give up. There are lots of supporting structures. Of course that varies and depends on the part of the world you are living. But the MS-community is large. Many very intelligent and enthusiastic people are working on the whole globe to improve the life of people with MS. Please try to bring up the energy to make active healthy decisions and think of MS as a full circle, where good lifestyle and treating all your health issues are important. If you have depressions or other mental challenges try to improve them in order to have enough energy for all the other aspects. Each puzzle piece helps with the outcome. And forget about the question "why me?" This doesn't help at all and only burns energy for nothing.

Where can you be found on the Internet?

Most of my time I spent on learning about MS and the adjustments to improve life with MS and my podcasts and blog articles are the extract of that. You can find everything I do and publish on my website in my shop and my newsletter. And I will share a bit of my private life on Instagram, but not too much. As it is very important for me to protect the privacy of my family.

Instagram: https://www.instagram.com/ms.perspektive/

YouTube: https://www.youtube.com/@ms-perspektive-dermultiple8807/

LinkedIn: https://www.linkedin.com/in/nele-von-horsten-bb59ba92/

Twitter/X: https://twitter.com/NeleHandwerker

Facebook: https://www.facebook.com/msperspektive

Pinterest: https://www.pinterest.de/MSPerspektive/

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I hope this overview gave you enough insight into my life with MS. Because I am not heavily affected by MS, I can put my energy into the two language versions of the podcast and other activities around MS.

See you soon and try to make the best out of your life,
Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(174)

#172: AI for MS. How the CLAIMS Project Could Transform MS Care – with Prof. Friedemann Paul

#172: AI for MS. How the CLAIMS Project Could Transform MS Care – with Prof. Friedemann Paul

In this episode, Prof. Friedemann Paul from Charité – Universitätsmedizin Berlin, Germany, explains how the European CLAIMS project aims to improve multiple sclerosis care through AI-assisted decision...

24 Jun 35min

#171: The Gut-Brain Axis in Multiple Sclerosis. Interview with Prof. Dr. Anne-Katrin Pröbstel

#171: The Gut-Brain Axis in Multiple Sclerosis. Interview with Prof. Dr. Anne-Katrin Pröbstel

The gut–brain axis in multiple sclerosis is an exciting field of research that connects the gut microbiome, immune system and central nervous system. In this interview, Prof. Dr. Anne-Katrin Pröbstel ...

17 Jun 19min

#170: Vaccinations and MS – What You Need to Know with Dr. Thomas Grüter

#170: Vaccinations and MS – What You Need to Know with Dr. Thomas Grüter

In this episode, Nele talks with neurologist Dr. Thomas Grüter about vaccinations and multiple sclerosis. The original interview was published in German in December 2024. This English version has been...

10 Jun 15min

#169: Multiple Sclerosis in Nepal. Diagnosis, Treatment and Access to Care

#169: Multiple Sclerosis in Nepal. Diagnosis, Treatment and Access to Care

In this episode, Nele speaks with Dr. Ayush Chandra and Dr. Avinash Chandra about multiple sclerosis in Nepal. They explain why MS is still often diagnosed late, how limited access to MRI, neurologist...

3 Jun 58min

#168: From Fragmented Care to Connected Care: The MS360° Approach with Dr. Isabel Voigt

#168: From Fragmented Care to Connected Care: The MS360° Approach with Dr. Isabel Voigt

In this episode, Dr. Isabel Voigt from the MS Center Dresden introduces the MS360° approach, a digital-first hybrid care model designed to make multiple sclerosis care more continuous, proactive, and ...

27 Mai 33min

#167: Living with MS: Fatigue, Walking & Energy — Insights from Sanam

#167: Living with MS: Fatigue, Walking & Energy — Insights from Sanam

In episode #167, Sanam Saeedi shares her perspective on living with MS, fatigue, walking and energy. Diagnosed in 2019, she explains how symptoms such as foot drop, balance issues and fatigue changed ...

20 Mai 28min

#166: Unseen MS Symptoms: A Patient Expert's Perspective from Iceland with Hjördís Ýrr Skúladóttir

#166: Unseen MS Symptoms: A Patient Expert's Perspective from Iceland with Hjördís Ýrr Skúladóttir

What are unseen MS symptoms really like? In this inspiring episode, Hjördís Ýrr Skúladóttir from Iceland shares her personal journey with multiple sclerosis, from diagnosis and burnout to becoming a p...

13 Mai 48min

#165: MS Doesn't Define Me – How Patti Bevilacqua Turned Multiple Sclerosis into a Life of Purpose

#165: MS Doesn't Define Me – How Patti Bevilacqua Turned Multiple Sclerosis into a Life of Purpose

What does it really mean to live a meaningful life with multiple sclerosis? In this episode, Patti Bevilacqua shares her deeply personal journey after being diagnosed with MS at just 22 years old. Ins...

6 Mai 49min

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