MS-Perspektive - The Multiple Sclerosis Podcast5 Sep 2023

#005: Whom do I tell about my MS diagnosis?

The topic today is the pros and cons of dealing openly with the MS diagnosis. Who should know about it and who perhaps (at first) should not. You can read the full article on my blog at: https://ms-perspektive.de/005-whom-do-i-tell

This time it's about the pros and cons of who you tell about your MS diagnosis in your family, circle of friends, love relationships and work environment.

I believe it's up to each person to decide. In the post, I share my experience with you.

Table of Contents

---

In the meantime, my focus is on my daughter, the topic of MS and writing. I've said goodbye to a secure permanent position and set up my own business at the beginning of 2022. In August 2022, I started the part-time master's program "Multiple Sclerosis Management" and have already successfully completed the first year and learned a lot. In addition to the German podcast, I have now started the English counterpart, which you are listening to right now. And I have a lot of project ideas waiting to be implemented. I am very happy with that.

But maybe it's different for you. And if you have superiors, their opinion of your illness and its course may influence their decision and your promotion. Some people will treat you with more respect because you are open and brave, others don't want to put you under too much stress, and the next one doesn't trust you.

You have to go your way, make your decisions and adjust them as needed if you feel it is right. I wish you luck with this!

---

See you soon and try to make the best out of your life,
Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(192)

#190: Living with multiple sclerosis. Gabriela's story and the "(un)seen faces of MS" Art Project

https://ms-perspektive.de/en/190-unseen-faces-of-ms/Living with multiple sclerosis often means experiencing symptoms that others cannot see. Austrian artist Gabriela Romagna shares her journey to an M...

4 Nov 32min

#189: New imaging in MS: understanding progression and finding better treatments | ECTRIMS 2026

How could new imaging in MS help us understand progression and develop better treatments? In this episode, I explore key insights from Daniel Reich's MSToronto2026 lecture and related research. Learn ...

28 Okt 15min

#188: Jan Van Amstel on EMSP's Four-Year Presidency and the Future of MS Advocacy in Europe

"Get rid of MS as soon as possible and make ourselves superfluous." — Jan van Amstel What can a stronger European voice achieve for people living with MS? In episode #188, EMSP President Jan van Amste...

21 Okt 31min

#187: Aging in multiple sclerosis: relapses, progression and treatment choices with Dr. Yi Chao Foong

Aging in multiple sclerosis brings new questions about relapses, gradual progression and treatment choices. In episode 187, Dr. Yi Chao Foong, an MS neurologist and researcher in Tasmania, explains wh...

14 Okt 29min

#186: Protecting nerve cells in multiple sclerosis: A new path toward neuroprotection with Prof. Manuel Friese

Why can multiple sclerosis progress even when relapses are well controlled? In episode 186, I speak with Prof. Manuel Friese about the next challenge in MS research: protecting nerve cells from damage...

7 Okt 43min

#185: Living with MS in Mexico – who gets diagnosed, who gets treated, and who gets left behind?

An MS diagnosis can depend on where you live, whether you can reach a neurologist and how quickly you can get an MRI. In this episode, Nele speaks with neurologist and neuroimmunologist Dr. Enrique Go...

30 Sep 36min

#184: MS treatment across the disease course – treat early, think long-term, don't give up too soon with Prof. Klaus Schmierer

Read the full blog post and interview here: https://ms-perspektive.de/en/184-klaus-schmierer/ How early should MS treatment start, how strongly should we treat, and is there ever a point when it becom...

23 Sep 41min

#183: Silent progression in MS. Can we really detect it early?

Can we detect gradual MS progression before it becomes obvious? In this episode, I look at what current research can — and cannot — tell us about subtle worsening without an obvious relapse. The key d...

16 Sep 34min