I'm Sick and Nobody Will Help Me
About IBD30 Okt 2018

I'm Sick and Nobody Will Help Me

What have you done when you couldn't get anyone to take the symptoms of IBD seriously and you found yourself out of options? For Meredith, the road to a Crohn's disease diagnosis was long and so frustrating that she wound up pleading for help from a specialist she'd never met. Going online to connect with other patients also took Meredith to places both light and dark, and she, Jaime, and I sort through our various experiences with social media as well as how we can work towards creating more hopeful content for new IBD patients in the future. Concepts mentioned on this episode: What Are Mast Cells?: https://www.verywellhealth.com/what-are-mast-cells-1944889 What Is Gastroparesis?: https://www.verywellhealth.com/what-is-gastroparesis-1741788 Find Meredith Smolen at: Find Jaime Weinstein at: Find Amber J Tresca at: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Episoder(200)

The Truth About Surviving IBD and Incontinence

The Truth About Surviving IBD and Incontinence

Katryna Loewen, a registered nurse diagnosed with ulcerative colitis in 2020, shares her journey through severe flare-ups, incontinence, and her decision to have a colectomy and ileostomy in 2024. She...

18 Nov 202545min

What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT

What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT

Samantha Sauer, BCPA, president of Gastroparesis Patient Association for Cures and Treatments (G-PACT), uncovers the challenges of living with gastroparesis and how it can overlap with IBD or other co...

4 Nov 202540min

The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS

The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS

Amber and Mariah discuss how women with chronic illnesses cope with advice on medication use in pregnancy—especially in light of the confusion around acetaminophen. Mariah shares her experiences with ...

15 Okt 202544min

How To Stay Active With IBD Featuring Sean Lochran

How To Stay Active With IBD Featuring Sean Lochran

Sean Lochran, who lives with IBD and an ileostomy, describes his IBD journey, including complications such as blood clots and adrenal insufficiency. Sean shares advice for staying active on difficult ...

7 Okt 202537min

How Patient Stories Change Perspectives and Influence Lawmakers

How Patient Stories Change Perspectives and Influence Lawmakers

Every person living with inflammatory bowel disease (IBD) can help change public policy by sharing their story and participating in advocacy events, such as visiting legislators in Washington, D.C. Am...

24 Sep 202552min

Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

Amber interviews artist Daniel Leighton, who shares his journey living with Crohn's disease from childhood. Daniel tells us how he didn't think of himself as an artist, but painting became a vital too...

17 Sep 202553min

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for ...

10 Sep 202542min

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

We get back to the basics of inflammatory bowel disease (IBD), including the differences between Crohn's disease, ulcerative colitis, and how IBD is different than irritable bowel syndrome (IBS). IBDo...

3 Sep 202541min

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