About IBD26 Mar 2019

Help for Parents With Crohn's Disease or Ulcerative Colitis

How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn's and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media.

1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project

Concepts and ideas discussed in this episode:

Resources From the Crohn's and Colitis Foundation:
- Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis
- Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist
- Just Like Me: http://justlikemeibd.org
- Quiz My IBD: http://www.ibdskillsquiz.org
- Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/
- Crohn's & Colitis Community: https://www.crohnscolitiscommunity.org/
The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/

Find Dr Rajeev Jain at:

Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/
Twitter: https://twitter.com/rajster

Find IBD Moms at:

Facebook: https://www.facebook.com/IBDMoms/
Twitter: https://twitter.com/ibdmoms
Instagram: https://www.instagram.com/ibdmoms/<

Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at:

Blog: https://crazycreolemommy.com/
Facebook: https://www.facebook.com/CrazyCreoleMama
Twitter: https://twitter.com/CrzyCreoleMommy/
Instagram: https://www.instagram.com/crazycreolemama/

Find Amber J Tresca at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutibd
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney

"About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(200)

The Powerful Impact of the IBD Community Featuring Katie Neu

Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel ...

19 Mai 42min

Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five...

5 Mai 1h 18min

Is Your Eye Pain Actually an IBD Flare?

Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-in...

21 Apr 16min

How to Fuel Athletic Performance In Chronic Illness Featuring T.L. Wright (The IBD Athlete)

T.L. Wright, known as The IBD Athlete and author of The SCD Athlete Cookbook, tells Amber about her frustrating decades-long journey to a Crohn's disease diagnosis. She explains the health reasons beh...

7 Apr 54min

Epidemiology, Big Data, and Biologics in Pregnancy

Episode transcript and more information at: https://bit.ly/AIBD198 What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and...

24 Mar 40min

The Insidious Reasons Why IBD Destroys Sleep

Everyone needs sleep, but so many of us struggle to get enough. People living with IBD know that a good night's sleep can feel like a distant dream, whether it's pain, urgent bathroom trips, or racing...

10 Mar 17min

How to Harness AI for Good Featuring Michael Tresca

Artificial intelligence (AI) is being utilized in healthcare for many purposes. Patients are wondering how they can safely and effectively use AI tools to educate themselves and to manage their health...

24 Feb 47min

How You Can Improve Intimacy When Living With IBD Featuring Dr Stacy Friedman

The bedroom can be a place of anxiety for people of all genders living with inflammatory bowel disease (IBD). How can you boost your confidence and deepen your connection with your partner while livin...

13 Feb 39min