Healthcare Disparities in IBD
About IBD5 Apr 2021

Healthcare Disparities in IBD

Hey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD.

IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these demographics are changing, and IBD is now considered a global disease.[1]

A harmful and pervasive misconception is that IBD does not affect people of various ethnic and cultural backgrounds. Minority patients are sometimes told that they can't have an IBD because they are of African, Latinx, Native American, or Asian descent. This leads to a delay in diagnosis and care. In the setting of IBD, which is difficult to treat, this can lead to significant complications that negatively affect every aspect of a person's life.

In this limited series, we explore the ways in which the healthcare system is underserving minority and LGBTQ patients who live with an IBD. We cover the spectrum of this issue including the lack of research in minority populations, how cultural ideas around nutrition affects patients, how patients of color can be better supported, and how legislation can play a role.

As a long-term IBD patient myself, it's my goal to help physicians, industry, and legislators understand how inequalities affect the IBD community and what they should be doing to improve patient care.

Subscribe to Healthcare Disparities in IBD wherever you listen to podcasts.

[1]Molodecky NA, Soon IS, Rabi DM, et al. Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review. Gastroenterology. 2012;142:46-e30. doi:10.1053/j.gastro.2011.10.001

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Episoder(200)

Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

Amber interviews artist Daniel Leighton, who shares his journey living with Crohn's disease from childhood. Daniel tells us how he didn't think of himself as an artist, but painting became a vital too...

17 Sep 202553min

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for ...

10 Sep 202542min

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

We get back to the basics of inflammatory bowel disease (IBD), including the differences between Crohn's disease, ulcerative colitis, and how IBD is different than irritable bowel syndrome (IBS). IBDo...

3 Sep 202541min

Unlocking the Secrets to Stress Management Featuring Jin Lee, PhD

Unlocking the Secrets to Stress Management Featuring Jin Lee, PhD

Stress is a huge problem for people who live with immune-mediated conditions like Crohn's disease or ulcerative colitis. The condition causes tension in all the parts of our lives. We can't get rid of...

30 Aug 202527min

How Storytelling Fosters Compassion for Kids with Chronic Illness

How Storytelling Fosters Compassion for Kids with Chronic Illness

A children's book leads to this conversation, which bridges the worlds of chronic illness, creativity, and connection. I talk with MB (Britt) Mooney, author of "The Mouse Who Couldn't Eat Cheese," a c...

19 Aug 202535min

How Propel a Cure is Transforming Crohn's Disease Research

How Propel a Cure is Transforming Crohn's Disease Research

Episode transcript and more information at: https://bit.ly/AIBD180 Grassroots organizations are an important part of the IBD landscape, helping fill in the many gaps in our underserved community. A...

5 Aug 202539min

From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein

From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein

Amber speaks with Hindy Klein, a member of the Orthodox Jewish community living with Crohn's colitis. Hindy shares how she manages IBD while observing Jewish laws, discussing challenges with diet, fas...

22 Jul 202530min

The Mind-Body Connection in IBS and IBD Featuring Ali Navidi, PsyD

The Mind-Body Connection in IBS and IBD Featuring Ali Navidi, PsyD

Amber interviews Dr. Ali Navidi, a gastropsychologist specializing in mental health for people with gastrointestinal disorders. They discuss the importance of addressing mental health alongside condit...

8 Jul 202544min

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