Healthcare Disparities in IBD
About IBD5 Apr 2021

Healthcare Disparities in IBD

Hey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD.

IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these demographics are changing, and IBD is now considered a global disease.[1]

A harmful and pervasive misconception is that IBD does not affect people of various ethnic and cultural backgrounds. Minority patients are sometimes told that they can't have an IBD because they are of African, Latinx, Native American, or Asian descent. This leads to a delay in diagnosis and care. In the setting of IBD, which is difficult to treat, this can lead to significant complications that negatively affect every aspect of a person's life.

In this limited series, we explore the ways in which the healthcare system is underserving minority and LGBTQ patients who live with an IBD. We cover the spectrum of this issue including the lack of research in minority populations, how cultural ideas around nutrition affects patients, how patients of color can be better supported, and how legislation can play a role.

As a long-term IBD patient myself, it's my goal to help physicians, industry, and legislators understand how inequalities affect the IBD community and what they should be doing to improve patient care.

Subscribe to Healthcare Disparities in IBD wherever you listen to podcasts.

[1]Molodecky NA, Soon IS, Rabi DM, et al. Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review. Gastroenterology. 2012;142:46-e30. doi:10.1053/j.gastro.2011.10.001

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Episoder(200)

Better Health With Breathwork for IBD Featuring Elizabeth Coldrick of Wildly Brave Wellness

Better Health With Breathwork for IBD Featuring Elizabeth Coldrick of Wildly Brave Wellness

Elizabeth Coldrick, a nutritional therapist and breathwork facilitator living with IBD and a permanent ostomy shares her experiences living in Bali, the challenges and benefits of managing IBD abroad,...

17 Jun 202548min

Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures

Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures

Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative col...

3 Jun 202540min

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses...

20 Mai 202552min

How Tech is Changing Gastroenterology

How Tech is Changing Gastroenterology

Amber and gastroenterologist Dr Neil Parikh discuss technology's impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers....

6 Mai 202527min

Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told...

22 Apr 202557min

Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn'...

8 Apr 202533min

Freelancing Freedom: Crafting Your Career While Caring for Your Health

Freelancing Freedom: Crafting Your Career While Caring for Your Health

It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and s...

25 Mar 202546min

Declutter Your Life While Living with Chronic Illness

Declutter Your Life While Living with Chronic Illness

Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to ma...

11 Mar 20251h 4min

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