DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance20 Mar 2024

Part 2 Kathleen King Endometriosis and Adenomyosis Advocate, with Johanna Huber interviewing.

"DEARG - Putting Kathleen King in the Hot Seat" with Johanna Huber:

Kathleen’s Personal Journey:

Diagnosed with endometriosis after a nine-year delay, facing dismissal from doctors and misinformation.

Frustrated by the lack of awareness and support, Kathleen became a dedicated advocate.

Current Advocacy Work:

Runs the DEARG podcast and leads various initiatives, including:
The Irish EndoMarch
MISE, an educational project on menstrual and endometriosis issues in schools
Research collaborations
Patient, corporate and media support
Advisor to OnaWave (CailinAI)
Advisor to TELL Health
Advisor to JOII
ESHRE Endometriosis Guidelines

Challenges and Importance:

Endometriosis advocacy faces funding difficulties, burnout risks, and the emotional toll of supporting patients.

Despite challenges, Kathleen emphasises the importance of accurate information and individualisation of care.

She advocates against misinformation and low-quality research, highlighting the need for critical evaluation.

Key Qualities for Advocacy:

Open-mindedness, active listening, and critical thinking skills

Passion and commitment to empowering others

Additional Points:

Kathleen underlines the crucial role of:

Accurate information for endometriosis patients

Standardised care and specialist access

Open communication, education, and support for women's health

Recognising and addressing abnormalities in menstrual health

Overall:

Kathleen King's personal experience and dedicated advocacy work highlight the challenges and importance of improving endometriosis awareness, diagnosis, and treatment. Her efforts contribute to empowering individuals, building stronger communities, and driving positive change.

BBC Radio 4 India Rakusen 28ish days later series. https://open.spotify.com/show/0le1kyKiXmaI8fsZL8owqp

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Episoder(25)

Embracing Yoga for Endometriosis and Migraine Relief with Jane Whelan

DEARG Podcast Episode 22: Embracing Yoga for Endometriosis and Migraine Relief with Jane WhelanEpisode OverviewIn this episode of the DEARG podcast, Kathleen sits down with Jane Whelan, a seasoned yog...

31 Jul 202455min

Empowering: Dearbhail Ormond on Building Community with the Frendo App

In this week's episode of the DEARG podcast, Kathleen welcomes Dearbhail Ormond, an advocate for endometriosis and adenomyosis awareness and the founder of the Frendo app and Frendo at Work program. D...

10 Jul 202441min

Breaking Barriers: Psychological Support and Coping Strategies for Endometriosis and Chronic Conditions

Dr Neesha Patel is an expert in coaching people to make positive lifestyle behaviour changes and maintain health and wellbeing, using the latest scientific research and psychological tools. This inclu...

19 Jun 202454min

Pelvic Health Matters: Managing Endometriosis and Adenomyosis with Jo Chapple

In this episode, Kathleen interviews Jo Chapple, a chartered physiotherapist specialising in female pelvic health. They discuss the importance of pelvic floor physiotherapy for individuals with endome...

5 Jun 20241h 1min

Jen Moore. They Said What?! Exposing Medical Gaslighting & Taking Charge of Endo/Adeno

Summary Jen Moore, aka Jen.dometriosis on social media, is an endometriosis and adenomyosis educator, speaker and campaigner. Following her 22 year long battle for a diagnosis, she now helps others su...

15 Mai 202454min

Shawna Scott. Pelvic Power: Taking Charge of Your Sexual Health with Endometriosis and Adenomyosis

Summary In this conversation, Kathleen chats to Shawna Scott, the founder of Sex Siopa and BodyGrá, about the importance of pleasure and sexual health in those living with endometriosis, adenomyosis a...

1 Mai 202457min

Shannon Cohn. The Power of Storytelling in Endometriosis Awareness

Shannon Cohn, the filmmaker behind the documentaries 'Endo What?' and 'Below the Belt,' discusses her personal journey with endometriosis and her mission to raise awareness and create change. The reac...

17 Apr 202424min

Public Health and Endometriosis, Orla O'Connor Endometriosis Advocate and Public Health Student

Endometriosis in Ireland: There is a lack of data on endometriosis in Ireland, including prevalence, diagnosis rates, and treatment. People with endometriosis often experience long wait times for diag...

3 Apr 20241h 7min