58: Advocating For Rare Disease with Chelsea Streit   (S2 E25)

58: Advocating For Rare Disease with Chelsea Streit (S2 E25)

In this inspiring episode of Autoimmune Adventures, hosts Stacy, Becky, and Alysia sit down with Chelsea Streit, a passionate rare disease advocate living with Cowden Syndrome and Sjögren’s Syndrome. Chelsea shares her powerful story of navigating chronic illness, emotional healing, and the small victories that make each day meaningful.

From the heartbreak of diagnosis to finding love, purpose, and advocacy, Chelsea’s journey shines a light on the resilience and courage of the chronic illness community. She opens up about how she manages flare days, balances rest with productivity, and uses creative hobbies and practical tools to find hope and healing.

💬 In this episode, we discuss:

  • How small victories can transform your chronic illness mindset

  • Emotional healing and stress management for autoimmune and rare diseases

  • Tools, hobbies, and routines that make hard days easier

  • The power of self-advocacy and community support

  • How Chelsea turned pain into purpose and found connection through advocacy

If you’re living with autoimmune disease, chronic illness, or a rare condition, this conversation will remind you that healing is not about perfection — it’s about persistence, purpose, and grace.

Subscribe to Autoimmune Adventures for more real stories of resilience, advocacy, and living well with chronic illness.

#AutoimmuneAdventures #ChelseaStreit #CowdenSyndrome #SjogrensSyndrome #RareDiseaseAdvocacy #ChronicIllnessWarrior #AutoimmuneAwareness #PatientAdvocacy #ChronicIllnessSupport #HealingJourney #SelfCare #RestAndRecovery #InvisibleIllness #MentalHealthAndChronicIllness #ResilienceAndHope

Episoder(75)

51: Helen Sheppard on Finding Your Authentic Voice (S2 EP 18)

51: Helen Sheppard on Finding Your Authentic Voice (S2 EP 18)

In Part Two of our series with Helen Sheppard, she shares how different parts of the brain are reflected in world religions—insights that inspired her book It’s Time to Wake Up the Trees. Helen also s...

24 Sep 202526min

50: Voice as Medicine with Helen Sheppard: Building Our World Through Sound (S2 EP 17)

50: Voice as Medicine with Helen Sheppard: Building Our World Through Sound (S2 EP 17)

Healing starts deep within—down to the resonance of our own DNA. In Part One of our two-part series with Helen Sheppard, we explore how using resonance and our own voice can shape the world around us ...

22 Sep 202537min

49: Navigating Chronic Illness Together: Deborah Sharp on Couples, Community, and Care (S2 EP 16)

49: Navigating Chronic Illness Together: Deborah Sharp on Couples, Community, and Care (S2 EP 16)

Living with chronic illness can feel isolating—but it doesn’t have to. On Autoimmune Adventures, psychotherapist Deborah Sharp shares why bringing your partner in as a teammate—not just a spectator—ca...

16 Sep 202558min

48: Garra Lloyd-Lester on Suicide Prevention and Chronic Illness (S2 EP 15)

48: Garra Lloyd-Lester on Suicide Prevention and Chronic Illness (S2 EP 15)

This week on Autoimmune Adventures, we pause for a deeper, more serious conversation during Suicide Prevention Week. For many living with chronic illness, the weight of depression, isolation, and even...

9 Sep 202546min

47: Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate (S2 EP 14)

47: Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate (S2 EP 14)

Join us for a powerful conversation with Anthony Heard, author of My Purple Patch, poet, and rare disease advocate. Anthony shares his journey with Immune Thrombocytopenia (ITP) and fibromyalgia, open...

1 Sep 202559min

46: Touched By Type 1 Diabetes with Elizabeth Forrest: Empowering the Chronic Illness Community (S2 EP 13)

46: Touched By Type 1 Diabetes with Elizabeth Forrest: Empowering the Chronic Illness Community (S2 EP 13)

In this episode of Autoimmune Adventures, we sit down with Elizabeth Forrest, founder of Touched By Type 1, an organization dedicated to raising awareness, empowering individuals, and building communi...

26 Aug 202558min

45: Julia Pearce on Grief with Chronic Illness (S2 EP 12)

45: Julia Pearce on Grief with Chronic Illness (S2 EP 12)

Life with chronic illness often brings layers of grief—grief for the life you once had, for the “normal” that keeps shifting, and for the constant reinvention these changes demand. In this episode of ...

19 Aug 202552min

44: Shawn Every on Restructuring Your Life After a Chronic Illness Diagnosis (S2 EP 11)

44: Shawn Every on Restructuring Your Life After a Chronic Illness Diagnosis (S2 EP 11)

Life after an autoimmune diagnosis can feel overwhelming—but it can also be the start of something new. In this inspiring conversation, we sit down with Shawn Jackson Every—businesswoman, chronic illn...

12 Aug 202548min

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