Aging with Down Syndrome

Aging with Down Syndrome

Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones aging with Down syndrome. You will hear from leading experts about insights and advances in the field. You will meet professionals who are supporting individuals with Down syndrome through their senior years, and hear first-hand accounts from families who have navigated this caregiving journey. They will talk candidly about the unique challenges and joys found in this aging process, issues related to Alzheimer’s dementia, and give practical tips from lived experience.

Historically speaking, resources on this topic have been limited. Thankfully—as people with Down syndrome are living longer—more information is starting to coalesce. We hope this podcast will be a helpful resource for families and caregivers.

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Episoder(22)

"Home Is a Place of Love"

"Home Is a Place of Love"

As Jadene wrestles with planning for Matt’s future with Alzheimer’s, where he should live is top of mind. Molly and Kristin talk about where their loved ones lived, and how the onset of dementia chang...

10 Feb 31min

What the NDSS & LuMind Merger Means for Alzheimer’s Disease Research

What the NDSS & LuMind Merger Means for Alzheimer’s Disease Research

The leaders of National Down Syndrome Society and LuMind discuss their recent merger and its implications for the Down syndrome community, particularly in relation to Alzheimer's disease research. Ab...

27 Jan 27min

Jadene’s Advocacy Journey: How Her Son’s Undiagnosed Autism Shaped Her Lifelong Advocacy

Jadene’s Advocacy Journey: How Her Son’s Undiagnosed Autism Shaped Her Lifelong Advocacy

Jadene talks with Kristin and Molly about events in Matt’s life that led her to be the advocate she is today. This episode dives into her experiences as a mother navigating the complexities of raising...

13 Jan 30min

A Tool to Help Screen for Dementia

A Tool to Help Screen for Dementia

Today we are talking about the Early Detection and Screen for Dementia (EDSD)—which is a checklist to help families and caregivers track changes in their loved one's behavior, skills, and abilities as...

30 Des 202523min

Common Health Issues Over 40 | A Conversation With Dr. Chicoine

Common Health Issues Over 40 | A Conversation With Dr. Chicoine

Dr. Brian Chicoine talks about some common health concerns facing people with Down syndrome as they get older—including thyroid issues, sleep apnea, and Alzheimer’s dementia. Dr. Chicoine is the co-fo...

16 Des 202548min

Welcome to Aging with Down Syndrome

Welcome to Aging with Down Syndrome

Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones over 40 aging with Down syndrome. In today’s episode, Jadene, Molly a...

2 Des 202514min

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