Nystagmus & albinism 101
Dr Jay Self is a children’s eye doctor, clinician researcher and professor at the University of Southampton. Albinism and nystagmus usually go hand in hand (but not always) Jay explains the impact ny...
17 Jan 202527min
Albinism Life “I am always remembered by people because I have albinism”
Jess is currently studying for her A-levels, she wants to become a lawyer. Jess talks about how hard it can be at school socially when you have albinism. Not fitting in with any group and how that can...
17 Jan 202551min
Albinism Life “The teachers didn’t know how to enlarge things”
Erin is 17 and her 15 year old sister Hattie has albinism. Erin chats openly about how school has been for Harriet and how Erin has felt really bad for her because of this. Erin chats about how she he...
17 Jan 202526min
Albinism Life “sketching in museums with my long cane blows peoples minds”
Fin is the most talented artist. She is severely sight impaired and describes the way she perceives the world through her art. Fin is so easy to chat to and we moaned about photophobia and making eye...
17 Jan 202540min
Introducing Albinism Life
Albinism Life is a podcast series which focuses on all aspects of life within the community. We celebrate the highs, acknowledge the lows and chat about everything in between.
17 Jan 20252min
