Albinism Life podcast

Welcome to Albinism Life! Brought to you by the Albinism Fellowship, this podcast dives into all things albinism-related. Hosted by Kristina Venning Rose, co-chair of the charity, we’re here to celebrate the highs, acknowledge the challenges, and share incredible stories from our community. Join us as we explore personal journeys, hear from medics about the latest in research, vision, and genetics, and give a voice to everyone in our amazing community. If you’d like to get involved or share your story, we’d love to hear from you! Drop us an email at info@albinism.org.uk.

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Episoder(19)

Albinism Life “The teachers didn’t know how to enlarge things”

Erin is 17 and her 15 year old sister Hattie has albinism. Erin chats openly about how school has been for Harriet and how Erin has felt really bad for her because of this. Erin chats about how she he...

17 Jan 202526min

Albinism Life “sketching in museums with my long cane blows peoples minds”

Fin is the most talented artist. She is severely sight impaired and describes the way she perceives the world through her art. Fin is so easy to chat to and we moaned about photophobia and making eye...

17 Jan 202540min

Introducing Albinism Life

Albinism Life is a podcast series which focuses on all aspects of life within the community. We celebrate the highs, acknowledge the lows and chat about everything in between.

17 Jan 20252min