Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork
The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A.In this episode, Terence discusses his approach to making decisions about treatme...
2 Jul 202514min
Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C
In part 5 of Terence O'Rourke's story, he again reflects on his working life and how this was impacted by both his haemophilia and its treatment.He discusses his approach to and choices about treatmen...
12 Jun 202513min
Reflections on a life with severe haemophilia. Part 4: The arrival of Factor VIII and an evolving career
In part 4 of our mini-series in conversation with Terence O'Rourke, he reflects on changes in treatment for haemophilia and the arrival of Factor VIII. Terence describes some of the prejudice he expe...
29 Mai 202512min
Reflections on a life with severe haemophilia. Part 3: Work, study and challenging treatment decisions
In the third part of our conversation, Terence O’Rourke looks back on his young adulthood in the late 1950s and early 1960s, starting work in an architect’s office and becoming a student. This was an...
15 Mai 202512min
Reflections on a life with severe haemophilia. Part 2: Education and dreams of the future
We rejoin Terence O'Rourke to as he reflects on growing up with haemophilia, not being able to go to school, his education, and the impact of this on his life. Now in his 80s, Terence also looks back ...
30 Apr 202513min
Reflections on a life with severe haemophilia: In conversation with Terence O ’ Rourke
In the first part of a six-part mini-series, Terence O’Rourke looks back on his childhood memories of living with severe haemophilia, including his education and experience of treatment. Terence, who ...
17 Apr 202517min
In conversation with Kate Khair: reflecting on a lifetime's achievement in haemophilia and bleeding disorders
In this episode of Haemcast, we speak to our very own Dr Kate Khair following her Lifetime Achievement award at EAHAD 2024. Tune in to hear about Kate's journet into nursing, the first patient she me...
20 Mar 202443min
Pathway to Cures; the venture philanthropy fund focused on transformative treatments for inheritable blood disorders ft. Len Valentino and Teri Willey
In this episode, host Luke Pembroke (Director of Community Engagement, Haemnet) sat down with Len Valentino (P2C Chief Executive Officer; and NBDF President & CEO) and Teri Willey (P2C Managing Direct...
9 Jan 202434min
