Lichen Sclerosus Podcast

Lichen Sclerosus Podcast

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

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Episoder(73)

Jaclyn's Lost Labia Journey: Surviving Alone

Jaclyn's Lost Labia Journey: Surviving Alone

Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling...

26 Feb 202154min

How to Snap Out of Appointment Anxiety

How to Snap Out of Appointment Anxiety

This week we talk about an awful drive I recently had to the doctor's office. I was overtaken by negative thoughts and emotions of what the future might bring. Eventually, I pulled myself out of those...

19 Feb 202127min

Carrie Bock’s LS Journey: From Pain To Love

Carrie Bock’s LS Journey: From Pain To Love

Does Lichen Sclerosus make penetrative sex painful for you? Has LS been a factor in a relationship breakup? Are you single and wonder if you'll ever be in a healthy relationship again? These are all q...

12 Feb 20211h

How are reproductive age women and steroids similar with Dr. Jill Krapf

How are reproductive age women and steroids similar with Dr. Jill Krapf

Welcome to season 2 of Lichen Sclerosus Podcast. For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproductive age with LS. This under-studied group is often...

5 Feb 202154min

How GRATITUDE can top FEAR and ANXIETY  when you have LICHEN SCLEROSUS

How GRATITUDE can top FEAR and ANXIETY when you have LICHEN SCLEROSUS

I woke up this Thanksgiving with a message of gratitude on my heart. Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy and happiness in your life. Find and focus on the p...

28 Nov 202026min

Is Lichen Sclerosus Lowering Your Sex Drive?

Is Lichen Sclerosus Lowering Your Sex Drive?

Fresh off the first Lichen Sclerosus Podcast Virtual Meetup I'm excited to bring fresh insights.As I'm sure you know because you live it Lichen Sclerosus does terrible things to our sex life. Sometime...

20 Nov 202034min

My Diagnosis Story: Kathy

My Diagnosis Story: Kathy

I'm so excited to bring back one of my favorite guests. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak wi...

13 Nov 20201h 5min

Lichen Sclerosus Diagnosis Stories: You Are Not Alone

Lichen Sclerosus Diagnosis Stories: You Are Not Alone

This week four Lichen Sclerosus Warriors share their diagnosis stories with us. Although each of their stories is individualized they all have similarities to our own. LS can be such a lonely disease ...

6 Nov 202028min

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