Lipedema Stories Podcast

Lipedema Stories Podcast

What do you get when you have an OT, RN, and COTA? A Lipedema and Lymphedema podcast, of course! Join the three lippy lymph ladies as we are joined by guests who will be telling their Lipedema or lymphedema stories. Laugh with us, cry with us, and find a community with us.

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Episoder(48)

Ultrasound Breakthrough & A Cousin’s Lipoedema Journey

Ultrasound Breakthrough & A Cousin’s Lipoedema Journey

Research moment: a 2025 pilot study on perioperative and intraoperative ultrasound showed improved precision and safety for liposuction in lipoedema patients by selectively targeting superficial fat a...

24 Jun 37min

German Landmark Trial: Liposuction Proven Medically Necessary for Lipedema

German Landmark Trial: Liposuction Proven Medically Necessary for Lipedema

This episode discusses a major German randomized trial comparing liposuction to conservative therapy for lipedema, its impact on symptom relief and insurance coverage, and why the study matters to pat...

17 Jun 35min

Lippy Lymph Ladies: Compression, Cupping & Post‑Op Survival Hacks

Lippy Lymph Ladies: Compression, Cupping & Post‑Op Survival Hacks

Hosts Lisa, Janine and Janae discuss a study showing complete decongestive therapy (including pneumatic compression) reduces limb volume in lipedema and secondary lymphedema, then share personal updat...

10 Jun 52min

Lipedema & Weight Loss Surgery: What It Can — and Can’t — Fix

Lipedema & Weight Loss Surgery: What It Can — and Can’t — Fix

In this episode the hosts review a systematic review showing bariatric/metabolic surgery can help mobility and weight loss but is not a primary treatment for lipedema; conservative care and targeted l...

3 Jun 49min

From Misdiagnosis to Movement: Gloria’s Lipoedema Fight and Recovery

From Misdiagnosis to Movement: Gloria’s Lipoedema Fight and Recovery

In this episode the hosts discuss new MRI research showing higher sodium and swelling in lipoedema and then sit down with Gloria, who shares her 11‑year journey from misdiagnosis to multiple lipoedema...

27 Mai 49min

Lippy Lymph Ladies: Morgan's Lipedema Breakthrough and Insurance Win

Lippy Lymph Ladies: Morgan's Lipedema Breakthrough and Insurance Win

In this episode, hosts Lisa, Janine, and Janae discuss recent lipedema research and welcome guest Morgan, who shares her personal journey from years of misdiagnosis to finally receiving insurance appr...

20 Mai 48min

New Lipedema Stages Revealed: 1.5 & 2.5 and What That Means

New Lipedema Stages Revealed: 1.5 & 2.5 and What That Means

In this episode we start with a research spotlight introducing two new intermediate lipedema stages (1.5 and 2.5) and findings on pain, total body water, muscle changes, inflammation, and imaging impl...

13 Mai 48min

Kim’s Lipedema Journey

Kim’s Lipedema Journey

This episode covers a recent study on elevated tissue sodium in lipedema and how it may relate to leg swelling, followed by a personal conversation with Kim and her husband about diagnosis, multiple l...

6 Mai 48min

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