Lipedema Stories Podcast

Lipedema Stories Podcast

What do you get when you have an OT, RN, and COTA? A Lipedema and Lymphedema podcast, of course! Join the three lippy lymph ladies as we are joined by guests who will be telling their Lipedema or lymphedema stories. Laugh with us, cry with us, and find a community with us.

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Episoder(48)

Lisa a CLT and her story: Lipoedema Uncovered: Stigma, Compression & Daily Life

Lisa a CLT and her story: Lipoedema Uncovered: Stigma, Compression & Daily Life

Hosts Lisa and Janae discuss a qualitative study showing that people with lipoedema face stigma, reduced participation in daily life, and decreased quality of life due to shame and perceived discrimin...

4 Mar 50min

Pycnogenol & Progress: Patty’s Lipedema Breakthrough

Pycnogenol & Progress: Patty’s Lipedema Breakthrough

In this episode of Lipedema Stories the hosts open with a research update reclassifying lipedema as hormonally influenced, then welcome guest Patty who shares her month-long experience using Pycnogeno...

25 Feb 44min

Julie’s story: Menopause, Estrogen Imbalance, and Lipoedema: One Patient’s Discovery

Julie’s story: Menopause, Estrogen Imbalance, and Lipoedema: One Patient’s Discovery

Hosts Lisa and Janae discuss new research linking menopause and estrogen receptor imbalance to lipedema, then welcome guest Julie to share her diagnosis, three liposuction procedures, and the dramatic...

18 Feb 48min

Update Episode: Is Lipedema Progressive? Research, Surgery Order & Surprising Findings

Update Episode: Is Lipedema Progressive? Research, Surgery Order & Surprising Findings

Hosts review recent research on whether lipoedema progresses, discuss surgical approaches (including the importance of treating the trunk) and practical tips like nighttime compression and vibration p...

11 Feb 49min

Unmasking Intimacy: Lipedema's Hidden Impact

Unmasking Intimacy: Lipedema's Hidden Impact

In this episode of Lipoedema Stories, hosts Lisa and Janae discuss a qualitative study about how lipedema affects sexual intimacy, body image, and daily life, then welcome guest Sam to share their per...

4 Feb 45min

When Lipedema Hits the Abdomen: Hidden Pain and Misunderstanding

When Lipedema Hits the Abdomen: Hidden Pain and Misunderstanding

This episode explores new research showing abdominal involvement increases with lipedema severity, highlights the U.S.–Europe debate on abdominal manifestations, and stresses the need for clearer diag...

28 Jan 55min

Sisters United: Facing Lipedema Together

Sisters United: Facing Lipedema Together

Three friends discuss new research showing rising Google searches for lipedema and share a heartfelt conversation with sisters Teresa and Carrie about diagnosis, surgeries, and conservative care. The ...

21 Jan 57min

Lipedema Stories: When Men Have It Too — Research & Real Talk

Lipedema Stories: When Men Have It Too — Research & Real Talk

Hosts Lisa, Janine and Janaye discuss new research suggesting lipedema may be underdiagnosed in men, share clinic stories, and introduce guest Jessica Johnson. Jessica recounts discovering her diagnos...

14 Jan 45min

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