Living with Long covid

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Episoder(107)

My return to work and the planning phase

My return to work and the planning phase

Send a text If you follow me on social media you may be aware I have started a slow phased return to work. I want to share this journey with you, the highs, lows and anything in-between. I am hopeful...

4 Des 202230min

Fatigued to fantastic with Dr Jacob Teitelbaum

Fatigued to fantastic with Dr Jacob Teitelbaum

Send a text In today's episode I am honoured to have a guest; Dr Jacob Teitelbaum MD talking with me about his own journey with post viral ME, and how this was one factor which shaped his life's work...

27 Nov 202240min

Suicide and my son - special guest Alexander Taylor

Suicide and my son - special guest Alexander Taylor

Send a text In recent months I have been contacted by many people feeling very low and even experiencing suicidal thoughts. I felt compelled to acknowledge this and after expressing my concerns, my w...

20 Nov 202235min

Update from my first ever podcast guest, and fellow long hauler, Ian

Update from my first ever podcast guest, and fellow long hauler, Ian

Send a text Today is episode 40 of the podcast, I can't quite believe that I have recorded 40 episodes, had some excellent guests join me; and most of all reached so many people across the world. Than...

13 Nov 202237min

UWS Pacing trials with Nilihan Sanal Hayes

UWS Pacing trials with Nilihan Sanal Hayes

Send a text In this episode I am fortunate to have Nilihan join me to talk about a pacing trial that is underway. Nilihan has a vast knowledge and experience in research and trials. Today we talk abo...

6 Nov 202227min

Symptoms and the seasons

Symptoms and the seasons

Send a text In this episode I talk about how the changes of the season may effect symptoms of Long Covid and other long term conditions. This can be improvement or exacerbation. This is something I ha...

30 Okt 202233min

Hope, Long Covid research, Long Covid kids and more with Dr Binita Kane

Hope, Long Covid research, Long Covid kids and more with Dr Binita Kane

Send a text In today's episode I am extremely lucky to have another fantastic guest; Dr Binita Kane. Dr Kane is a consultant respiratory physician at Manchester University Foundation Trust. A Long Co...

23 Okt 202239min

I am not Long Covid!

I am not Long Covid!

Send a text This episode of the podcast comes from the heart. I wanted to talk about how becoming unwell has taken my sense of purpose, almost my full identity however it has also encourage me to get ...

16 Okt 202223min

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