Living with Long covid

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Episoder(107)

Life has to be more than work!

Life has to be more than work!

Send a text In this podcast episode I talk about returning to work, and how life needs to be much more than a process of work, rest, recover, repeat. In my personal experience I have found this approa...

9 Okt 202223min

Holiday challenges and wins with long term conditions

Holiday challenges and wins with long term conditions

Send a text I have recently been on holiday, this is usually a time of excitement, looking forward to family time, exploring new places, eating delicious food and drink and having some downtime from g...

2 Okt 202237min

Travel tips for chronic illness & disability- with guest Cass

Travel tips for chronic illness & disability- with guest Cass

Send a text In todays episode I talk with returning guest Cass. I have recently been away and prior to going I had so many fears and reservations, learning to live with chronic conditions will do that...

25 Sep 202234min

Looks can be deceiving!

Looks can be deceiving!

Send a text On todays episode I discuss how the way you look does not often reflect how you feel. I talk about invisible illness and chronic conditions, how the fluctuating symptoms and invisible symp...

18 Sep 202218min

The self that was, and the self that is! with Dr Anna Robson

The self that was, and the self that is! with Dr Anna Robson

Send a text On todays episode I discuss the self that was and the self that is, with my guest Dr Anna Robson. Anna is an emergency medicine trainee and is living with Long Covid. Working through the ...

11 Sep 202233min

Guilty if I do, and guilty if I don't!

Guilty if I do, and guilty if I don't!

Send a text In todays episode I discuss the issue of guilt. Living with a long term condition has evoked this feeling in so many areas of my life and I personally find it difficult to shake off. I hav...

4 Sep 202224min

Fatigue Vs Tired

Fatigue Vs Tired

Send a text Fatigue is often mistaken for being tired, needing to sleep or rest. I discuss the misconception on this episode and talk around the differences between fatigue and being tired. I talk ab...

28 Aug 202228min

Disability is not a dirty word!

Disability is not a dirty word!

Send a text I have a guest on today's podcast, Cass is a fellow nurse and lives with Long Covid, they contracted covid in April 2020. They had prior experience of being disabled, with hidden condition...

21 Aug 202234min

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