Living with Long covid

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Episoder(107)

Can Long Covid go into remission? What about ME/CFS?

Can Long Covid go into remission? What about ME/CFS?

Send a text On this episode I explore the possibility of remission with Long Covid, and try to understand how the crash and relapse cycle works. Are better days remission? or can Long Covid go into a ...

7 Aug 202222min

A day in the life! the Long Covid journey

A day in the life! the Long Covid journey

Send a text This episode of the podcast explores what a day on the life living with Long Covid can look like, this was more challenging to put into words than I originally thought. That was due to the...

21 Jul 202228min

What is the difference between symptom management and treatment?

What is the difference between symptom management and treatment?

Send a text This episode explores the difference between Treatment and symptom management. How important are they? and is one more important than the other? I discuss how self care compliments symptom...

21 Jul 202227min

What is POTS?

What is POTS?

Send a text On this weeks podcast I am talking about POTS (Postural orthostatic tachycardia syndrome), this is something as a nurse I have not come across, however there appears to be a link with POTS...

5 Jul 202226min

The experience of a fellow long hauler, and my first podcast guest

The experience of a fellow long hauler, and my first podcast guest

Send a text I am so excited to have my first ever guest on the podcast. Ian is a fellow long hauler and co creator of the 4th P, he is also an avid listener of the podcast. Ian contacted me after lis...

5 Jul 202235min

Long term illness and toxic positivity

Long term illness and toxic positivity

Send a text What is toxic positivity? In todays episode I discuss I discuss the difference between positivity and toxic positivity. I explore how toxic positivity can impact and subdue emotions. Toxi...

22 Jun 202219min

The Long Covid emotional rollercoaster

The Long Covid emotional rollercoaster

Send a text This episode discusses the emotional rollercoaster that is experienced when living with Long Covid. I reflect upon my emotions and how I have felt very alone at times. The multitude of emo...

22 Jun 202224min

The true importance of self care; its much more then a facial

The true importance of self care; its much more then a facial

Send a text This episode discusses what self care is, and why it is important to implement self care into your daily life. I discuss the guilt around taking time out for yourself and why we should no...

21 Jun 202225min

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