Living With SMA

Living With SMA

The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.

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Episoder(55)

15: Health Screening

15: Health Screening

Welcome to the Living With SMA Podcast. Today SMA UK Host Kerry Thompson talks to Sue Tucker and Clare Gray about Health Screening with a focus on mammograms and cervical screening. If you prefer to...

4 Mar 202234min

14: SMA Type 3

14: SMA Type 3

Welcome to the Living With SMA Podcast. Today SMA UK Host Steve Jones talks to Eden Kent and Josh Wintersgill about SMA Type 3. If you prefer to watch this episode, please visit our YouTube channel ...

11 Feb 202258min

13: Employment & Blogging

13: Employment & Blogging

Welcome to the Living With SMA Podcast. Today SMA UK Host Ross Lannon talks to Kerry Thompson about blogging and career opportunities. Each of our guests today shares their own personal views and i...

18 Nov 202153min

12: Periods

12: Periods

SMA UK Host Mia Myers talks to Jordanne and Beth about periods and how to manage them. The topic of periods is something pretty taboo in society and not really spoken about enough. So hopefully this c...

29 Okt 202149min

11: Hitting Our Forties

11: Hitting Our Forties

In a conversation about their lives, Toby (SMA UK Trustee) and Andi (Treat SMA) talk about getting kicked out of university, mental health, treatment, work, healthcare, support and more…. If you pre...

8 Okt 202142min

10: Family journeys from diagnosis to school

10: Family journeys from diagnosis to school

Welcome to the Living With SMA Podcast. Today SMA UK Host Martyn Sibley talks to Portia Thorman and Mark & Panna Wilson about their family journeys from diagnosis to school and Nusinersen treatment. ...

24 Sep 202154min

9: Fashion, Make-up and Confidence

9: Fashion, Make-up and Confidence

Welcome to the Living With SMA Podcast. Today SMA UK Host Mia Myers talks to Ellie Darby-Prangnell and Sophie Bradbury-Cox about Fashion, Make-up and Confidence. Mia will be leading a number of epis...

20 Aug 202142min

8: Siblings - Part 2: Chris & Alex

8: Siblings - Part 2: Chris & Alex

Chris talks to his brother Alex, asking him what it's like having a brother with SMA. They both share a passion for sport and are massive fans of Northampton Saints. Chris has also coached his broth...

28 Jul 202127min

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