7: Treatment Part 1: Risdiplam
SMA UK Host Martyn Sibley talks to Emma Vogelmann, Ross Hovey and Olivia Webster about their experience with Risdiplam. Each of our guests today shares their own personal views and individual stori...
14 Jul 20211h 13min
6: Siblings - Part 1: Jordanne & Shannon
SMA UK Host Jordanne talks to her sibling Shannon about their relationship growing up and what things are like now.If you prefer to watch this episode, please visit our YouTube channel here.If you do ...
7 Jul 202122min
5: Parents Perspective of Diagnosis 25 years ago
SMA UK Host Suzanne talks to her mum Margaret where we hear about her experience as a parent and the SMA diagnosis experience 25 years ago.If you prefer to watch this episode, please visit our YouTube...
23 Jun 202142min
4: Adult Onset SMA
SMA UK Host Martyn Sibley talks to Peter Hartley, who shares his personal journey to a diagnosis of SMA Type 4 in adulthood. Talking about how this ‘Adult Onset’ form of the condition has changed his ...
20 Mai 202133min
3: My Experience of Renting
Following on from Episode 2 on Home Adaptations, SMA UK Host Josh Wintersgill talks with Julian Fiorentini about the challenges he faced around finding and renting accommodation in the UK. Josh share...
29 Apr 202128min
2: My Experience of Home Adaptations
SMA UK Host Josh Wintersgill talks to Julian Fiorentini, who shares his personal journey from school days, through living in a care home to his experience of making adaptations to his home, as an adul...
7 Apr 202148min
1: Mental health and wellbeing during COVID-19 outbreak
SMA UK Hosts Josh Wintersgill, Becca Torricelli and Emma Vogelmann talk about mental health and wellbeing during the pandemic, sharing their own personal views and individual stories.
3 Mar 202140min
