Episode 14: The Other Side of Grief
Due to some audio issues, I recycled a vlog post that I recorded before the podcast was even released. I talk about my transition from being a newly diagnosed Angelman father to accepting Maddie's dia...
14 Apr 202311min
Episode 13.5 : Family Update
I just give a quick update on what has been happening with our family and when you can expect the next blog and podcast.
31 Mar 20232min
Episode 13: Kitty Murphy - National Special Events Director ASF
Kitty Murphy who is the National Special Events Director for the Angelman Syndrome Foundation joined the podcast to discuss the upcoming 2023 Angelman Syndrome Foundation Walk. Kitty touches upon what...
17 Mar 202312min
Episode 12: Feeling Frustrated
Being a special needs parent can be difficult. Over the past few weeks I've been feeling especially frustrated by Maddie's Angelman Syndrome diagnosis. I do some reflection on the things that frustrat...
10 Mar 202317min
Episode 11: Pediatric Physical Therapist Micah Huegel
Micah Huegel joined the podcast for episode 11. Micah is a pediatric physical therapist with Mary Free Bed in Grand Rapids who is certified in neurodevelopmental techniques. He touches on best therapy...
3 Mar 202328min
Episode 10: Awake At Night
In Episode 10 we discuss what keeps me up at night. There are major hurdles that we will have to overcome, especially in regards to Maddie's future.
17 Feb 202324min
Episode 9: Medicaid Redeterminations
The Medicaid redetermination moratorium is set to expire on April 1st. We talk about what this means and how you can prepare.
10 Feb 202319min
Episode 8: What is Angelman Syndrome?
Episode 8 focuses on what Angelman Syndrome is. We go into the genetics of Angelman Syndrome and some common symptoms of Angelman Syndrome. We also discuss how rare Angelman Syndrome is compared to ot...
3 Feb 202322min
