Episode 8 Preview: We're Back On February 3rd
Maddie's Joy: An Angelman Journey podcast is back on February 3rd. We'll be going back to basics and talking about what Angelman Syndrome is, and how rare it is compared to other syndromes.
27 Jan 20231min
Episode 7: Sleep
Sleep issues affect 20-80% of children with Angelman Syndrome. Based on my experience, that number is on the higher side. See some simple tips that can make a world of difference in your child's life.
16 Des 202218min
Episode 6: Caregiver Burnout
On today's episode I build upon last week's episode and talk about caregiver burnout. I talk about the article "Why Self-Care Is Essential to Parenting" by Juliann Garey. I hope you enjoy this episode...
9 Des 202217min
Episode 5: Build Your Community
In Episode 5 I describe how I built a community of support around our family.
2 Des 202219min
Episode 4: The Clinic Visit
We visited an Angelman Syndrome specific clinic for the first time. We detail our experience at Children's Hospital Colorado.
18 Nov 202223min
Episode 4: A Preview
We went to the Angelman Syndrome specific clinic in Denver this week. Here's just a preview of what's to come in the next week.
11 Nov 20221min
Episode 3: ASF CEO Amanda Moore
The Angelman Syndrome Foundation CEO Amanda Moore joined the podcast to talk about a variety of resources available to caregivers of all ages.
4 Nov 202227min
Episode 2: Maddie's Story
In this episode I take you through Maddie's road to diagnosis. I also discuss the advice that shook me from my post diagnosis fog.
28 Okt 202231min
