My Lupus Living Room

My Lupus Living Room

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

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Episoder(56)

Episode 40 - Chad Limones - Aurinia Pharmaceuticals

Episode 40 - Chad Limones - Aurinia Pharmaceuticals

On this episode Suzanne is joined by Chad Limones from Aurinia Pharmaceuticals to discuss lupus nephritis. The two have a broad conversation about what exactly lupus nephritis is, the warning signs, a...

15 Okt 202428min

Addressing Mental Health Challenges For Lupus Patients

Addressing Mental Health Challenges For Lupus Patients

Suzanne sits down with Dr. William Fikter, a Psychiatrist, with Signature Health. They discuss the challenges that lupus patients may face with mental health and the ways that Signature Health and the...

26 Sep 202448min

Episode 38 - Steve Perhach - Being a Supportive Partner

Episode 38 - Steve Perhach - Being a Supportive Partner

Suzanne sits down with Steve Perhach to talk about his experience with being married to someone with lupus.  Steve’s wife, Kelly, is a brave lupus warrior who has had her share of ups and downs throug...

29 Aug 202441min

Episode 37 - Hannah Powell

Episode 37 - Hannah Powell

Suzanne joined by Hannah Powell, a relatively newly diagnosed patient who has already had her fair share of trials and tribulations. Hannah talks candidly about her diagnosis, the challenges she's fac...

24 Jul 202438min

Episode 36 - Steve Morris - Intervention Point

Episode 36 - Steve Morris - Intervention Point

Suzanne sits down with Steve Morris of Intervention Point to discuss the benefit of setting up a trust and what it could mean for your family. Not only can they provide security, and peace of mind, bu...

24 Jun 202428min

Episode 35 - Links For Lupus

Episode 35 - Links For Lupus

Kelly Perhach stopped by the office to provide a recap of her recent Links Fore Lupus golf outing. Kelly holds many fun and unconventional fundraisers throughout the year to raise money for our chapte...

27 Mai 202414min

Dr Van Warren- Patient Panel

Dr Van Warren- Patient Panel

For this month's episode we wanted to share Dr. Van Warren's presentation from our Passport to Better Health event in April. Dr. Warren provides a broad overview of lupus and answers patient questions...

16 Apr 202430min

Episode 33 - Ashley Houston - Honoring Dontasia Nevins

Episode 33 - Ashley Houston - Honoring Dontasia Nevins

On this episode Suzanne sits down with Ashley Houston. Ashley's sister, Dontasia Nevins, passed away in January of 2023 from complications of lupus. Ashley discusses her sisters battle with lupus, kee...

4 Mar 202440min

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