My Lupus Living Room

My Lupus Living Room

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

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Episoder(56)

Episode 8- ALL IN for Lupus Nephritis with Aurinia Pharmaceuticals Inc.

Episode 8- ALL IN for Lupus Nephritis with Aurinia Pharmaceuticals Inc.

On this episode of My Lupus Living Room, Suzanne talks with Shannon Cabot from Aurinia Pharmaceuticals Inc.. Shannon is in charge of Regional Professional Relations & Advocacy and she talks about ALL...

18 Aug 202130min

Episode 7- A Mans Inspiring Journey with Lupus Nephritis

Episode 7- A Mans Inspiring Journey with Lupus Nephritis

Lupus comes in many forms, but lupus nephritis is probably one of the most serious. In this episode of My Lupus Living Room, Suzanne talks to Ryan Pike about his long and inspiring journey with lupus ...

1 Jul 202131min

Episode 6- ExactCare Pharmaceuticals

Episode 6- ExactCare Pharmaceuticals

This week, Suzanne talks to Margaret Lizotte, Vice President of Clinical Development at ExactCare. We have some exciting news to share with you regarding Hydroxychloroquine. Listen to the episode to...

27 Mai 202134min

Episode 5- The COVID-19 Vaccine from Patients' Perspective

Episode 5- The COVID-19 Vaccine from Patients' Perspective

The Covid-19 Vaccine is here, and we're all eager to ensure our safety. But as a lupus patient, you might have more questions. Should you get it? Is it safe? Will it cause a flare? What are the side e...

9 Apr 202132min

Episode 4- All About Hair!

Episode 4- All About Hair!

For many lupus patients, hair loss is a real issue. How can we prevent hair loss and hair damage? What products should we use to protect our hair? What kinds of wigs are worth looking into? In this ep...

3 Mar 202133min

Episode 3- Preparing for the Unknown

Episode 3- Preparing for the Unknown

The future is so unknown, especially in today's world. How can we prepare for the future when we have no idea what could happen? What if something does happen? In this episode, our host Suzanne talks ...

10 Feb 202143min

Episode 2 - Don't Be Blue, Talk it Through!

Episode 2 - Don't Be Blue, Talk it Through!

Mental health is so often overlooked in the treatment plan for chronic illnesses, yet it is so crucial to overall wellness. Our host, Suzanne, gets real about mental health while living with lupus. Sh...

23 Des 202032min

Episode 1 - Ghosting the Support Group

Episode 1 - Ghosting the Support Group

So, you've finally reached a good place in your lupus journey. But where do you go from there? Suzanne chats with Aletha Acree about her path from newly diagnosed patient in a support group to LFA, GO...

11 Nov 202030min

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