Narcolepsy 360

Narcolepsy 360

Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy. Join Claire Crisp, our Executive Director, as she chats every week with people within our community.

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Episoder(58)

Narcolepsy 360: Dr. George Church

Narcolepsy 360: Dr. George Church

Dr. George Church is a Professor at Harvard & MIT, co-author of 580 papers, 143 patent publications & the book "Regenesis"; developed methods used for the first genome sequence (1994) & million-fold c...

22 Apr 202126min

Narcolepsy 360: Ginna Freehling

Narcolepsy 360: Ginna Freehling

Ginna Freehling is a neuroscience graduate and works in cancer clinical research at a biotech company. She is also a PWN. In this episode, Ginna shares how at the age of twenty she started experiencin...

8 Apr 202128min

Narcolepsy 360: Dr. Jennifer Gudeman

Narcolepsy 360: Dr. Jennifer Gudeman

Dr. Jennifer Gudeman is the Vice President, Medical and Clinical Affairs at Avadel Pharmaceuticals. In this episode, Dr. Gudeman and Claire discuss how Avadel Pharmaceuticals is seeking FDA approval f...

25 Mar 202125min

Narcolepsy 360: Travis Pavlicek

Narcolepsy 360: Travis Pavlicek

Travis Pavlicek is a husband, father of three and his son Cruz is a child with narcolepsy. In this episode, Travis shares how the onset of Cruz's narcolepsy symptoms escalated within a span of 3 weeks...

11 Mar 202130min

Narcolepsy 360: Shamarla Morgan

Narcolepsy 360: Shamarla Morgan

Shamarla Morgan is a PWN and a narcolepsy advocate. In this episode, Shamarla shares how despite a self-diagnosis of narcolepsy type 1 within the first year of her symptoms, it took four years for her...

25 Feb 202126min

Narcolepsy 360: Dr. John Peever

Narcolepsy 360: Dr. John Peever

Dr. John Peever is a professor of Cell and Systems Biology at the University of Toronto. In this episode, Dr. Peever shares why he got into narcolepsy and other sleep disorders research. He shares wha...

11 Feb 202128min

Narcolepsy 360: Ginger Zee

Narcolepsy 360: Ginger Zee

Ginger Zee is the chief meteorologist for ABC News, author, advocate and a person with narcolepsy.  In this episode, Ginger shares her journey to being diagnosed with narcolepsy type 2. She also share...

28 Jan 202147min

Narcolepsy 360: Belle Hutt

Narcolepsy 360: Belle Hutt

Belle Hutt is a fitness instructor, influencer, author, advocate and a pwn. In this episode, Belle shares her journey to being diagnosed with narcolepsy type 1. She also shares how she navigated her ...

1 Okt 202027min

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