Narcolepsy 360

Narcolepsy 360

Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy. Join Claire Crisp, our Executive Director, as she chats every week with people within our community.

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Episoder(58)

Narcolepsy 360: Dr. Indra Narang

Narcolepsy 360: Dr. Indra Narang

Dr. Indra Narang is the Director of Sleep Medicine at the Hospital for Sick Children, in Toronto, Canada. She is also an Associate Professor at the University of Toronto. Dr. Narang specializes in man...

17 Sep 202030min

Narcolepsy 360: Emily Kreuziger

Narcolepsy 360: Emily Kreuziger

Emily Kreuziger is a mom, a professional snowmobiler and a person with narcolepsy. In this episode, Emily shares her long diagnosis process. After being diagnosed and learning more about narcolepsy, ...

3 Sep 202039min

Narcolepsy 360: Gary Rutter

Narcolepsy 360: Gary Rutter

Gary Rutter is a sheep shearer, a dad and a person with narcolepsy. You read it right, a sheep shearer, a job so physical that you burn the same amount of calories as if you just ran a marathon. In th...

20 Aug 202041min

Narcolepsy 360: Dr. Deborah Hartman

Narcolepsy 360: Dr. Deborah Hartman

Dr. Deborah Hartman leads the global research program for narcolepsy and other sleep-wake disorders at Takeda, a biopharmaceutical company. In this episode, Dr. Hartman talks about Takeda's approach t...

30 Jul 202016min

Narcolepsy 360: Lauren Thomas

Narcolepsy 360: Lauren Thomas

TW: This episode discusses sexual assault and rape, which may be triggering for some individuals. Lauren Thomas is a person with narcolepsy, a narcolepsy advocate and works in the champagne business. ...

16 Jul 202042min

Narcolepsy 360: Dr. David Ingram

Narcolepsy 360: Dr. David Ingram

Dr. David Ingram is a pediatric sleep physician at Children's Mercy Hospital. In addition to caring for children with sleep problems in clinic, he is the founding editor of the ATS Pediatric Sleep Cas...

2 Jul 202030min

Narcolepsy 360: Shannon Burkoth

Narcolepsy 360: Shannon Burkoth

Shannon Burkoth is a person with narcolepsy, mother, and narcolepsy advocate in the rare disease space. In this episode, Shannon shares how she was diagnosed with narcolepsy when she turned 30, but si...

18 Jun 202035min

Narcoley 360: Kelly Main

Narcoley 360: Kelly Main

Kelly Main is a person with narcolepsy, studying law, and expert sailor living in New Zealand. In this episode, Kelly shares that she struggled with narcolepsy symptoms since her childhood, but becaus...

4 Jun 202034min

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